Tag Archive for: data collection

Seeing the Bigger Picture of Survival Through Patient Advocacy

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As patient advocates (as in most other things in life), it seems the more we learn, the more see what we don’t know. Whether we’re involved in promoting a patient-centered approach to research, direct care, survivorship, policy change or education, there’s a daily twist and update for us to wrap our brains around. And no matter which arena we find ourselves in, we are always looking for the endpoint: How far have we come in cancer care, and how does […]

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What Caught Our Eye: Cassidy-Graham Repeal Plan; Bipartisan ACA Hearings; Financial Issues for Childhood Survivors; IBM’s Watson Not Living Up to Expectations; and More

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What Caught Our Eye (WCOE), September 8, 2017 | What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. | “Cassidy-Graham: the Obamacare repeal plan McCain is supporting, explained” — The senator who cast the final vote to kill Obamacare repeal is unexpectedly helping to revive that effort from the dead. Sen. John McCain told the Hill Wednesday that he would support a plan […]

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What Caught Our Eye: ACA Support at All-Time High, Kasich: ACA Repeal is ‘Very Bad Idea,’ Cancer’s Financial Burden, and Your Cancer Genome

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What Caught Our Eye is our week-in-review blog series. Ohio Gov. John Kasich says he won’t “sit silent” and watch the Affordable Care Act’s Medicaid expansion get “ripped out” as Republicans work to repeal the law. | High-risk pools are at the center of most of the Republican plans to replace the ACA.

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WCOE: Effects of Financial Toxicity, Patient Database Helps Researchers Nationally, New CLRC Handbook for Survivors, Metastatic Cancer and Employment

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What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. #FinancialToxicity and high #costs of care create an undue physical & emotional burden on #cancer #survivors: https://t.co/5TecXglJjC — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) February 17, 2016 Ohio State-led patient database fills national […]

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Guest Post by Amy Abernethy of Flatiron Health: Long-Term Medical Data Collection Improves Care Quality, Outcomes

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I once had a patient named Janet. Janet was a curly redhead emergency department nurse. She was vibrant, sweet, and vivacious, had melanoma, and was passionate about her data (her “story” as she liked to call it) being used in ways that would impact the future of cancer care. But this isn’t as easy as […]

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