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Posts

Guest Post: For the Love of a Friend

August 9, 2016/in Cancer News, Cancer Policy Blog Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

My dear friend Avery[1], a woman I’ve known since we were 10 years old (in 5th grade together) was diagnosed with inflammatory breast cancer (IBC) in 2006. Having observed my mother’s battle with breast cancer in the 1980s, I considered myself a veteran of the struggle. Times change. Diseases evolve. The intervening years—from the 80s […]

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WCOE: Making Informed Healthcare Decisions, Something We Can All Agree On, and the Power of Advocacy

April 24, 2015/in Cancer News, Cancer Policy Blog Clinical Guidelines, Payment Reform, Quality Cancer Care, Survivorship Care NCCS News /by actualize

  Few Consumers Are Using Quality, Price Information To Make Health Care Decisions https://t.co/jHm1W09icY — Amy Berman (@NotesOnNursing) April 21, 2015 Conversations w/ advocates @sfuldnasso "Payment reform should focus on quality, not quantity of patient care" @PhRMA https://t.co/xhpKTdG0tr — NCCS – National Coalition for Cancer Survivorship (@CancerAdvocacy) April 24, 2015 Why Many Doctors Don't Follow […]

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WCOE: ACA Open Enrollment, Drug Prices and Innovation, Breast Cancer Awareness and More

October 24, 2014/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Coordination, Care Planning, Clinical Trials, Palliative Care, Quality Cancer Care, Survivorship Care NCCS News /by actualize

This week, several articles caught our eye: Amy Berman shared her own experience “Choosing Wisely” when she opted for a single dose of radiation therapy to alleviate pain from bone metastases, instead of a course of 10 treatments. The Kaiser Family Foundation reported that 89% of uninsured individuals polled are not aware that the next open […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-10-24 17:36:442021-09-29 07:34:22WCOE: ACA Open Enrollment, Drug Prices and Innovation, Breast Cancer Awareness and More

WCOE: Different Treatment Options Require Consideration of Patient Preferences, and What We Can Learn from Price Transparency in Veterinary Medicine

August 15, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Payment Reform, Quality Cancer Care NCCS News /by actualize

In “Breast Cancer Chemotherapy Varies Widely: Study Raises Questions About Early Treatment Choices,” Dr. Elaine Schattner, contributor to Forbes, directs readers to a recently released study that compares the risk of hospitalization between patients with early-stage breast cancer who received different chemotherapy regimens. The study also presented that the six most commonly administered chemotherapy regimens […]

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https://canceradvocacy.org/wp-content/uploads/Different-Treatment-Options-Require.jpg 639 1000 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-08-15 13:30:352020-11-27 13:10:49WCOE: Different Treatment Options Require Consideration of Patient Preferences, and What We Can Learn from Price Transparency in Veterinary Medicine

Focus on the Care Video: Palliative Care and Living Well with Cancer

June 5, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Palliative Care, Quality Cancer Care NCCS News /by actualize

Last week we noted two recent articles addressing palliative and end of life care issues, including an article written from the first-hand experience of Amy Berman, who is both a nurse and an individual living with cancer. In Amy Berman’s recent post on the Health Affairs Blog, she describes palliative care as the “best friend of the seriously ill.” […]

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WCOE: Amy Berman’s “Less Is More” Approach and End of Life Care

May 31, 2014/in Cancer News, Cancer Policy Blog Care Planning, Palliative Care, Quality Cancer Care, Survivorship Care NCCS News /by actualize

In the May 22nd Health Affairs online blog, “Living My Life My Own Way,” Amy Berman writes about what she knows firsthand and what she has learned from many years of professional experience.  And she writes and speaks about it so well, which is one of her many gifts.  She was diagnosed with inflammatory breast cancer in October […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-05-31 10:29:552014-05-31 10:29:55WCOE: Amy Berman’s “Less Is More” Approach and End of Life Care

Amy Berman’s Perspective of Palliative Treatment Highlights Issues in “Triple Aim” Approach to Health Care Delivery

March 28, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Palliative Care, Quality Cancer Care NCCS News /by actualize

If you already know of Amy Berman, have heard her story, or have been fortunate enough to have spent time with her, you will read more about what words like “patient centered” and “choosing wisely” look like when carried out to treat metastatic cancer.  And you will also be exposed to issues that deal with  the concept […]

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https://canceradvocacy.org/wp-content/uploads/Palliative-Treatment-Highlights-Issues.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-03-28 12:24:592020-11-30 12:17:42Amy Berman’s Perspective of Palliative Treatment Highlights Issues in “Triple Aim” Approach to Health Care Delivery

When the Patient Knows Best

January 22, 2013/in Cancer News Palliative Care, Quality Cancer Care NCCS News /by actualize

Oncology nurse Theresa Brown shares Amy Berman’s decision to forego aggressive treatment for her Stage 4 inflammatory breast cancer diagnosis in favor of palliative care aided by a health care team who respected her individual values and needs to receive care on her own terms. Recognizing the importance of the patient’s perspective, Brown encourages all […]

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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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  • About
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute