Gena Gurman: Bridging the Gap in Survivorship Care with Compassion, Creativity, and Cognitive Support
Meet Gena Gurman, OTDS. An occupational therapy doctoral student, Gena created a powerful new resource to help cancer survivors understand and manage cognitive changes after treatment ...
NCCS Joins 35+ National Organizations in Opposing Harmful Medicaid Cuts
The National Coalition for Cancer Survivorship (NCCS) proudly joined more than 35 national patient advocacy organizations in signing a joint letter urging Congress to reject devastating cuts to Medicaid proposed in the FY25 budget reconciliation package. The letter, coordinated by the Partnership to Protect Coverage (PPC), highlights how these cuts ...
Webinar – Understanding Medicaid: What Advocates Need to Know
The National Coalition for Cancer Survivorship (NCCS) presents “Understanding Medicaid: What Advocates Need to Know.” Designed for cancer survivors, caregivers, and health care professionals, this session sheds light on Medicaid's critical role in providing health coverage to 74 million Americans, including cancer survivors and their families. During this educational webinar, ...
Two Diagnoses, One Mission: Tracy and Tim Steffek on Advocating for Survivors
Meet Tracy and Tim Steffek. After Tracy was diagnosed with breast cancer at 36—just four months postpartum—and then again with tongue cancer one year later, the couple turned their experience into action. Now, they advocate for parents with cancer, push for whole-person care, and fight to make survivorship support a ...
Kirby Lewis – A Relentless Voice for Male Breast Cancer and Survivorship
Meet Kirby Lewis. After being diagnosed with breast cancer in 2012 and later facing metastatic recurrence, he became a passionate advocate, raising awareness that men can get breast cancer too and pushing for better survivorship care. Learn more about Kirby in our Advocate Spotlight ...
A Voice for Change: Rebecca Muñoz’s AYA Cancer Journey of Advocacy and Research
Meet Rebecca Muñoz. Diagnosed with breast cancer at 29, she turned her challenges into advocacy, founding Chemotherapy Cold Cappers and working tirelessly to improve care for AYA cancer patients. From testifying for biomarker legislation to mentoring future cancer researchers, Rebecca’s advocacy is creating lasting change. Learn more about Rebecca in ...
NCCS Joins 28 Organizations Expressing Concern to Humana & CMS Over New Coverage Policy for Non-Small Cell Lung Cancer (NSCLC)
NCCS was one of twenty-eight organizations to sign patient community letters to Humana and the Centers for Medicare and Medicaid Services (CMS) expressing concern about Humana’s coverage policy for the treatment of non-small cell lung cancer (NSCLC). The new policy is significantly more restrictive than the National Comprehensive Cancer Network (NCCN) ...
NCCS Endorses Health Care Affordability Act
Recently, NCCS endorsed the Health Care Affordability Act — bicameral legislation making permanent the Affordable Care Act’s (ACA) enhanced premium tax credits (PTCs) for Marketplace coverage as extended through the Inflation Reduction Act. According to the Congressional Budget Office (CBO), if the PTCs are allowed to expire at the end ...
Webinar: NCCS Cancer Policy Roundtable Highlights
During our Fall Cancer Policy Roundtable in November 2023, NCCS hosted a compelling series of panels and guest speakers, discussing important issues in quality cancer survivorship care. As many of our CPAT members across the country were unable to join this in-person event, we wanted to provide highlights from the ...
CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery
Yesterday, the Centers for Medicare and Medicaid Services (CMS) announced that it will retain procedure codes for breast cancer reconstruction, after hearing feedback from NCCS and other patient advocates, patients, and health care professionals. NCCS asked CMS to retain the S codes for breast reconstruction, so that people in need ...
