Cancer Nation logo

Survivorship Survey

a light blue graphic silhouette of a shape resembling a quote bubble, in the foreground a woman has her arms crossed.

Cancer Nation Survivorship Survey

Cancer Nation (formerly National Coalition for Cancer Survivorship or NCCS) conducts an annual Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all. In 2025, we fielded our seventh annual survey.

Survivorship Survey: Clinician Perspective Web Briefing

September 10 | 1:00 PM ET

For seven years, Cancer Nation’s Survivorship Survey has tracked the experiences of survivors and caregivers navigating cancer care. This year, we wanted to hear the other side of the story: what clinicians see as the barriers to delivering coordinated, whole-person care. Cancer Nation worked with Edge Research to survey 306 primary care providers and 302 oncologists nationwide. The findings reveal a system where care coordination is fragmented, survivorship planning lags behind every other phase of the cancer care continuum, and post-treatment care still has no clear owner.

Join us September 10 for a live briefing as we present the full findings and what they mean for policy, practice, and the 18 million+ people living with, through, and beyond cancer.

Survey Reports

2025

a thumbnail preview of the first page of the 2025 survey executive summary
Our 2025 survey revealed erosion in trust and satisfaction in care, deepening financial and mental health burdens, and continued underuse of Survivorship Care Plans.

2024

thumbnail of 2024 State of Survivorship Executive Summary
Our 2024 survey contained new questions exploring clinical trial participation, seeking second opinions, and experiences with survivorship care plans, among other topics.

2023

Thumbnail of State of Survivorship Survey: 2023 Report Cover by NCCS
The 2023 Survey explored the caregiver experience for the first time. It also features new data on integrative oncology, and the effect of cancer treatment on employment.

2022

The 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.

2021

2021 Survivorship Survey report thumbnail
The 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.

2020

2020 Survivorship Survey Report cover
In the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.

2019

In our initial survey, we found that financial impacts of treatment topped patient’s list of concerns. We also explored side effects of treatment and gaps in survivorship care.

News and Citations

NPR Logo

NPR, June 2026

More Americans survive cancer. But the psychological impacts can persist for years

Natalie Krebs

BMC Health Services Research, July 2022

Potential inequities in availability of care from breast care nurses: a qualitative study reporting the experiences and perspectives of women with metastatic breast cancer in Australia

Andrea L. Smith, Frances Boyle, and Sophie Lewis

Oncology Times, February 2025

A Closer Look at the 2024 NCCS State of Survivorship Survey

Peggy Eastman

Healio.com (HemOnc Today), January 2025

Survey of cancer survivors reveals low rates of second opinions, primary care follow-up

Jennifer Byrne

Nature Reviews Clinical Oncology, May 2023

Mitigating long-term and delayed adverse events associated with cancer treatment

M.B. Lustberg, N.M. Kuderer, A. Desai, et al

American Family Physician, 2023

Editorial: Improving Communication and Support in Cancer Care

Elisabeth Kuper, MD

Conquer Magazine, June 2023

Benefits of Exercise During and After Cancer Treatment

Nancy Litterman Howe, PhD(c)

Sage Journals, April 2023

A Qualitative Study of the Impact of the COVID-19 Pandemic on Metastatic Breast Cancer Care

Joshua Woods, BA, Shekinah NC Elmore, MD, MPH, Lesley Glenn, BS, et al

BMC Health Services Research, July 2022

Potential inequities in availability of care from breast care nurses: a qualitative study reporting the experiences and perspectives of women with metastatic breast cancer in Australia

Andrea L. Smith, Frances Boyle, and Sophie Lewis

Data Requests

Cancer Nation accepts requests from researchers and advocacy organizations wanting to use the State of Survivorship data set to support their research and practice for the purpose of improving quality of care for those touched by cancer.

Submit a Request »

2025 Survivorship Survey Supporters

Presenting Sponsor

Sponsors

Genmab
AstraZeneca, Sheri and Les Biller Family Foundation, Bristol Myers Squibb
Eisai, Kite