The State of Cancer Survivorship
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. In 2024, we fielded our sixth annual survey.
Hear the 2024 Survivorship Survey Results!
In our 2024 State of Survivorship Survey results briefing, NCCS CEO Shelley Fuld Nasso and Edge Research Principal Pam Loeb highlight both the alignment and differences between caregivers and patients in their decision-making and satisfaction with cancer care. Our 2024 survey also introduced new questions, exploring reasons for participating — or choosing not to participate — in clinical trials, seeking second opinions, and experiences with survivorship care plans, among other topics.
Watch the briefing and find the 2024 Survey summary and materials here.
Survey Reports
2024
Our 2024 survey contained new questions exploring clinical trial participation, seeking second opinions, and experiences with survivorship care plans, among other topics.
2023
The 2023 Survey explored the caregiver experience for the first time. It also features new data on integrative oncology, and the effect of cancer treatment on employment.
2022
The 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
2021
The 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
2020
In the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
2019
In our initial survey, we found that financial impacts of treatment topped patient’s list of concerns. We also explored side effects of treatment and gaps in survivorship care.
News and Citations
A Closer Look at the 2024 NCCS State of Survivorship Survey
Peggy Eastman
Healio.com (HemOnc Today), January 2025
Survey of cancer survivors reveals low rates of second opinions, primary care follow-up
Jennifer Byrne
Nature Reviews Clinical Oncology, May 2023
Mitigating long-term and delayed adverse events associated with cancer treatment
M.B. Lustberg, N.M. Kuderer, A. Desai, et al
American Family Physician, 2023
Editorial: Improving Communication and Support in Cancer Care
Elisabeth Kuper, MD
Benefits of Exercise During and After Cancer Treatment
Nancy Litterman Howe, PhD(c)
A Qualitative Study of the Impact of the COVID-19 Pandemic on Metastatic Breast Cancer Care
Joshua Woods, BA, Shekinah NC Elmore, MD, MPH, Lesley Glenn, BS, et al
BMC Health Services Research, July 2022
Potential inequities in availability of care from breast care nurses: a qualitative study reporting the experiences and perspectives of women with metastatic breast cancer in Australia
Andrea L. Smith, Frances Boyle, and Sophie Lewis
Data Requests
The National Coalition for Cancer Survivorship (NCCS) accepts requests from researchers and advocacy organizations wanting to use the State of Survivorship data set to support their research and practice for the purpose of improving quality of care for those touched by cancer.
2024 Program Supporters
