Survivorship Survey
Cancer Nation State of Survivorship Survey
Cancer Nation (formerly National Coalition for Cancer Survivorship or NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all. In 2025, we fielded our seventh annual survey.
The 2025 Survivorship Survey Results Are Here!
The 2025 Cancer Nation Survivorship Survey captures the voices and realities of over 2,000 cancer survivors across the United States. Cancer Nation worked with Edge Research to conduct our seventh annual nationwide survey of cancer survivors, exploring their experiences living with, through, and beyond cancer. Cancer Nation uses this survey to turn lived experience into action by demanding the policies and care survivors need to truly thrive.
New areas we explored in this year’s survey include:
- Management of chronic conditions along with cancer treatment.
- Confidence moving into post-treatment care.
- Deeper dive on Survivorship Care plans.
- Understanding the emotional toll of cancer care on mental health.
- Knowledge of Medicare prescription drug out-of-pocket caps and Medicare Prescription Payment Plan.
- Comfort with the implementation of AI in cancer care.
Survey Reports
2025
Our 2025 survey revealed erosion in trust and satisfaction in care, deepening financial and mental health burdens, and continued underuse of Survivorship Care Plans.
2024
Our 2024 survey contained new questions exploring clinical trial participation, seeking second opinions, and experiences with survivorship care plans, among other topics.
2023
The 2023 Survey explored the caregiver experience for the first time. It also features new data on integrative oncology, and the effect of cancer treatment on employment.
2022
The 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
2021
The 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
2020
In the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
2019
In our initial survey, we found that financial impacts of treatment topped patient’s list of concerns. We also explored side effects of treatment and gaps in survivorship care.
News and Citations
A Closer Look at the 2024 NCCS State of Survivorship Survey
Peggy Eastman
Healio.com (HemOnc Today), January 2025
Survey of cancer survivors reveals low rates of second opinions, primary care follow-up
Jennifer Byrne
Nature Reviews Clinical Oncology, May 2023
Mitigating long-term and delayed adverse events associated with cancer treatment
M.B. Lustberg, N.M. Kuderer, A. Desai, et al
American Family Physician, 2023
Editorial: Improving Communication and Support in Cancer Care
Elisabeth Kuper, MD
Benefits of Exercise During and After Cancer Treatment
Nancy Litterman Howe, PhD(c)
A Qualitative Study of the Impact of the COVID-19 Pandemic on Metastatic Breast Cancer Care
Joshua Woods, BA, Shekinah NC Elmore, MD, MPH, Lesley Glenn, BS, et al
BMC Health Services Research, July 2022
Potential inequities in availability of care from breast care nurses: a qualitative study reporting the experiences and perspectives of women with metastatic breast cancer in Australia
Andrea L. Smith, Frances Boyle, and Sophie Lewis
Data Requests
Cancer Nation accepts requests from researchers and advocacy organizations wanting to use the State of Survivorship data set to support their research and practice for the purpose of improving quality of care for those touched by cancer.
2025 Survivorship Survey Supporters
Presenting Sponsor
Sponsors
Genmab
AstraZeneca, Sheri and Les Biller Family Foundation, Bristol Myers Squibb
Eisai, Kite
AstraZeneca, Sheri and Les Biller Family Foundation, Bristol Myers Squibb
Eisai, Kite
