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ACA Update | May 19, 2017: Senate Negotiates their Version of the AHCA, Waits for New CBO Score
This week, NCCS and other patient advocacy organizations met with Senate offices regarding health care reform. The groups explained that the American Health Care Act (AHCA) as passed by the House is a serious threat, and does not in fact protect individuals with pre-existing conditions such as cancer. As we reported recently, the MacArthur Amendment guts protections for pre-existing conditions by allowing states to opt out [...]

Young Adult Cancer Survivors Worry What the AHCA Would Mean for Them
Last month, I had the honor of speaking at CancerCon, an incredible gathering of 650 adolescent and young adult (AYA) cancer survivors, their caregivers, and health care providers and advocates from across the country. Along with Kelsey Nepote, NCCS Advocacy Manager, and Kate Houghton, CEO of Critical Mass, we presented “From Patient to Advocate – Using Your Voice to Make Change.” We talked about the journey from [...]

What Caught Our Eye: GOP Lawmakers Face AHCA Backlash at Home, A Profile on New FDA Chief Scott Gottlieb, and Survivorship Care Planning
What Caught Our Eye (WCOE), May 12, 2017 - What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. - “According to the nonpartisan Center on Budget and Policy Priorities, at the highest point of all, the 400 households with annual incomes exceeding $300 million apiece, the tax cut would be worth an estimated $7 million.” [...]

ACA Update | May 5, 2017: AHCA Passes in House, Now Faces Major Obstacles in Senate
Yesterday, the House of Representatives passed the American Health Care Act (AHCA), including an amendment authored by Congressman Tom MacArthur (R-NJ) and brokered with members of the Freedom Caucus, which would allow states to opt out of providing essential health benefits and community rating. Essential health benefits (EHBs) are ten services the ACA requires insurers to include in all plans, such as hospitalization [...]

What Caught Our Eye: House Passes ACA Repeal, Faces Senate Hurdles; Risky Prostate Cancer Treatment; Medical Debt; ‘Right to Try’; Rx Pricing
What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. “House Republicans approved their plan to replace the Affordable Care Act on Thursday. Here’s a rundown of key provisions in the American Health Care Act and what would happen if the Senate approves them and the bill becomes law.” [...]

NCCS Joins Cancer Organizations to Express Opposition to the American Health Care Act
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting a letter to Congressional leaders…

Poor Amendments Cannot Fix A Bad Bill
By Ben Fishman, NCCS Board Member—Three years ago this week, a specially-trained neurosurgeon opened up my scalp, and for next 12 hours, he delicately resected as much of a golf-ball sized tumor as possible without permanently damaging the area of my brain that controls speech and fine motor skills. The fact that I can type this article on a normal keyboard and read it aloud is a testament to the doctor’s skill. Without him, or the team who supported the procedure [...]