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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
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        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
        • The 1986 ClubMake a monthly commitment to support Cancer Nation, empower cancer survivors, and advance public policy.
        • Fundraise for Cancer Nation
        • Ways to GiveLearn about other ways you can contribute to Cancer Nation such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • Cancer Nation News Blog
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
    • Newsletter: Cancer Nation News
  • Policy

        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved

        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
        • Cancer Nation Corporate Council
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.

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        • The 1986 Club
  • Survivorship Survey

        • Cancer Nation Survivorship Survey

        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Surveys by Year

        • Clinician Perspective (2026)
        • 2025 Survivorship Survey
        • 2024 Survivorship Survey
        • 2023 Survivorship SurveyThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survivorship SurveyThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survivorship SurveyThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survivorship SurveyIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist

        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians

        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources

        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources

        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • 40th Anniversary Gala
    • 2026 Cancer Nation Summit
    • 2026 Cancer Nation Virtual Summit
    • Ellen L. Stovall Award
      • 2026 Winners
      • Awardees
      • Nominations
      • Committees
    • Igniting Hope Awards Reception
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
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      • Spring 2024
      • Fall 2023
      • Spring 2023
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NCCS is now Cancer Nation. Find out more about our next chapter.    Join Us

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News

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NCCS receives Cardinal Health Foundation grant to improve patient safety

August 2, 2012
The National Coalition for Cancer Survivorship was selected by the Cardinal Health Foundation as one of 42 grant recipients to fund…
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Cancer Survival Toolbox

NCCS updates two long-standing publications; begins offering Cancer Survival Toolbox End of Life program as a standalone

July 19, 2012
NCCS has recently updated two of its long-standing publications: one that addresses employment rights as a cancer survivor and the…
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https://canceradvocacy.org/wp-content/uploads/TOOLBOX-Greyscale-Logo.jpg 545 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2012-07-19 16:24:432020-11-30 13:54:02NCCS updates two long-standing publications; begins offering Cancer Survival Toolbox End of Life program as a standalone
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NCCS sponsors IOM study to demographic issues in quality of cancer care

July 5, 2012
NCCS, along with 11 other organizations sponsored an Institute of Medicine (IOM) consensus study: Improving the Quality of Cancer…
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NCCS participates in roundtable meeting to discuss future of Health IT

July 2, 2012
NCCS was recently invited to participate in a roundtable discussion on the potential role of Health Information Technology in cancer…
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https://canceradvocacy.org/wp-content/uploads/2014/06/FacebookProfile3.png 280 280 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2012-07-02 16:41:572012-07-02 16:41:57NCCS participates in roundtable meeting to discuss future of Health IT
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NCCS applauds the Supreme Court decision upholding the Affordable Care Act

June 28, 2012
The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all types of cancer, commends…
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Band-aids for the health law

Band-aids for the health law

June 21, 2012
White House officials say they are confident the Supreme Court will uphold the health-care law, but they also are preparing for a range…
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Surviving cancer: It’s complicated

June 21, 2012
Cancer is complicated. And being a survivor can be complicated, too -- confounding, confronting, and confusing. Even starting with…
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US cancer survivors to rise by a third by 2022, report says

June 20, 2012
The number of Americans living with cancer will increase by nearly a third to almost 18 million by 2022, according to a report released…
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News

  • News
    • Cancer Nation News Blog
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    • Policy Comments
    • Issue Statements
    • Newsletter: Cancer Nation News
    • Cancer Convos Podcast

Latest News

a photo of a medical professional and patient discussing a care plan

New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

October 22, 2026
We have said it for years: when treatment ends, survivors need a plan. A written record of the care we received. A roadmap for what…
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https://canceradvocacy.org/wp-content/uploads/doctor-patient-care-plan.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-10-22 12:38:192026-10-22 13:35:52New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next

September 24, 2026
Desa-Rhea Jefferson survived liver cancer at 3 and thyroid cancer as an adult. She says ringing the bell is a starting point, not a finish line. Read more.
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Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
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https://canceradvocacy.org/wp-content/uploads/Stovall-Award-Honorees-2026-web-featured.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-09-17 13:55:462026-09-22 13:46:42Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

Take Action

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Cancer Nation conducts an annual Survivorship Survey to explore how patients and survivors are living with, through, and beyond cancer. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

Learn More and Request Data Here »
Link to: Cancer Nation Advocates

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Cancer Nation Advocates is a a program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together

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Link to: Survivor Stories

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Cancer Nation represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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  • About
    • Our Mission
    • What is Advocacy?
    • Our History
    • Our Team
    • Financial Information
    • Employment
    • Contact Us
    • Make A Gift
    • The 1986 Club
    • Fundraise for Cancer Nation
    • Ways to Give
    • Partnerships
  • News
    • Cancer Nation News Blog
    • Advocate Spotlight
    • Policy Comments
    • Issue Statements
    • Newsletter: Cancer Nation News
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Protecting Access to Medicaid for Cancer Survivors
    • Comprehensive Cancer Survivorship Act (CCSA)
    • Cancer Care Planning and Communications Act (CCPCA)
    • DIEP Flap Access
    • Policy Comments
    • Issue Statements
    • Quality Measurement Research
  • Get Involved
    • Cancer Nation Advocates
    • Cancer Nation Leadership Academy
    • Cancer Nation Corporate Council
    • Advocacy Opportunities
    • Subscribe to Cancer Nation Updates
    • Follow Cancer Nation on Social Media
    • Survivor Stories
    • Cancerversary
    • Make A Gift
    • The 1986 Club
    • Fundraise for Cancer Nation
    • Ways to Give
  • Survivorship Survey
    • Clinician Perspective (2026)
    • 2025 Survivorship Survey
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    • 2020 Survivorship Survey
  • Survivorship Checklist
    • Start Your Cancer Survivorship Checklist
    • Survivorship Resources
    • Cancer Rehabilitation
    • Integrative Oncology
    • Palliative Care
    • Cognitive Healing
    • Survivorship Checklist Guide for Clinicians
  • Resources
    • Cancer Survival Toolbox
    • Telehealth
    • Health Insurance & Open Enrollment
    • Care Planning for Cancer Survivors
    • Ina® The Intelligent Nutrition Assistant
    • Remaining Hopeful
    • Self Advocacy
    • Talking With Your Doctor
    • Taking Charge of Your Care
    • Order Our Resources
    • Tools For Care Providers
    • Telehealth Project
    • Survivorship Champions Webinars
    • Survivorship Checklist Guide for Clinicians
  • Events
    • 40th Anniversary Gala
    • 2026 Cancer Nation Summit
    • 2026 Cancer Nation Virtual Summit
    • Ellen L. Stovall Award
      • 2026 Winners
      • Awardees
      • Nominations
      • Committees
    • Igniting Hope Awards Reception
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
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      • Spring 2023
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute