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NCCS Responds to Dr. Don Dizon’s “The Awakening of the e-Patient” Commentary

February 6, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Quality Cancer Care NCCS News /by actualize

In his ASCO Connection commentary, “ The Awakening of the e-Patient: Are We Prepared to Engage?” Dr. Don Dizon confirms from the provider perspective what we at NCCS know to be true: patients want to be engaged in decision-making about their care, especially for a serious diagnosis like cancer. Dr. Dizon writes of the emergence of “e-patients,” who spend time researching their disease on the Internet and connecting via social media with other patients. To be sure, there are challenges, including the quality of the information found online and the additional time it may take for physicians to talk through studies with patients and help explain the data.

Dr. Dizon writes, “More and more often, patients are coming in with fairly sophisticated questions about their pathology, treatment regimens, and clinical trial options. I have found myself rendering treatment recommendations only after I’ve sat with a newly diagnosed patient for some time discussing (and yes, even debating) the data. I have also come to appreciate that an evidence-based approach to many cancers must take into account the individual and that her preferences and goals are as important as the results from the randomized clinical trials we hold as the gold standards. Not only do I appreciate these conversations, I have come to anticipate them. Unfortunately, this is not a universal experience.”

We are grateful to physicians like Dr. Dizon who understand the importance of engaged patients, recognize that treatment decisions require an understanding of the individual’s goals and preferences, and take the time to have thorough discussions with patients about their care. NCCS is developing a tool to help patients communicate their goals and preferences, and we will be launching it soon, so stay tuned.

 

Post by Shelley Fuld Nasso, NCCS Chief Executive Officer

Tags: ASCO, Cancer Survivorship, ePatient, patient tools
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  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Survivorship Champions
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • Ellen L. Stovall Award
      • Nominations
      • Honorees
      • Sponsors
      • Committees
    • From Shadows to Life: A Biography of the Cancer Survivorship Movement
    • Cancer Policy Roundtable
      • Spring 2021 Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute