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NCCS joined colleagues in the cancer patient and provider community in providing advice to the Food and Drug Administration (FDA) regarding strategies to anticipate, mitigate, and report shortages of drugs and biologicals. In the last several years, cancer patients and many others with serious and life-threatening illnesses have experienced disruptions in supply for a number […]
In an article in the USA Today of March 13, 2013, reporter Liz Szabo directs attention to a study published in the New England Journal of Medicine. Szabo says that the small study suggests that doctors can measure circulating tumor DNA in women with advanced breast cancer in order to refine treatment. This measurement may […]
Denise Grady reports in the New York Times regarding a study of the gaps in ovarian cancer care that was presented at the recent annual meeting of the Society of Gynecologic Oncology. The research study found that many women with ovarian cancer receive treatment that is not consistent with recommended standards for care. A number […]
The National Coalition for Cancer Survivorship joins the American Association for Cancer Research (AACR) and our colleagues in the cancer advocacy community as we note the sad passing of Zora Brown, a pioneering advocate of research and awareness. Ms. Brown’s survivorship marked more than two decades with breast cancer and then ovarian cancer and, through […]
NCCS joined its colleagues in the patient advocate and cancer care provider community in offering comments to the Food and Drug Administration (FDA) on an alternative approval pathway for drugs to treat certain diseases where there is an unmet medical need. FDA requested public comment on a proposal that was developed by the President’s Council […]
In an opinion piece in the Washington Post, Hagop Kantarjian, Leonard Zwelling, and Tito Fojo offer a perspective on cancer drug prices as well as advice on how to reduce prices. In his book “Justum Pretium,” Aristotle discusses the relationship between price and worth, a topic continued 16 centuries later by Albert the Great and […]
NCCS joined colleagues in the cancer advocacy community in submitting comments regarding proposed standards for the expanded Medicaid program that was established by the Affordable Care Act. The rules that have been proposed by the Centers for Medicare & Medicaid Services would grant a state great flexibility in the design of its Medicaid program, if […]
The National Coalition for Cancer Survivorship is pleased to announce that the eHealth Initiative has included three of NCCS’s patient resources in the recently launched Health IT Cancer Resource Guide. The eHealth Initiative is a non-profit organization whose mission is to drive improvement in the quality, safety, and efficiency of healthcare through information and technology. The national organization […]
On February 14, 2013, the National Cancer Institute (NCI) announced research that found that adults treated with chemotherapy for non-Hodgkin’s lymphoma and other forms of cancer have an increased risk of acute myeloid leukemia (AML). The study, completed by researchers at NCI and colleagues, describes a pattern of risk for those treated with chemotherapy for […]
In a blog in Forbes, Peter Ubel asks, “Do Oncologists Lie to Their Patients About Their Prognoses?” Ubel shares a case study in which an oncologist gave a patient a false and overly optimistic estimate of his chance for remission. He says of the doctor’s action, “The oncologist’s behavior that day, the sudden switch from […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute