Entries by actualize

Widespread Flaws Found in Ovarian Cancer Treatment

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Denise Grady reports in the New York Times regarding a study of the gaps in ovarian cancer care that was presented at the recent annual meeting of the Society of Gynecologic Oncology.  The research study found that many women with ovarian cancer receive treatment that is not consistent with recommended standards for care.  A number […]

Cancer Community Mourns the Loss of Survivorship Advocate Zora Brown

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The National Coalition for Cancer Survivorship joins the American Association for Cancer Research (AACR) and our colleagues in the cancer advocacy community as we note the sad passing of Zora Brown, a pioneering advocate of research and awareness.  Ms. Brown’s survivorship marked more than two decades with breast cancer and then ovarian cancer and, through […]

NCCS Joins Colleagues in Offering Comments on an Alternative Approval Pathway

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NCCS joined its colleagues in the patient advocate and cancer care provider community in offering comments to the Food and Drug Administration (FDA) on an alternative approval pathway for drugs to treat certain diseases where there is an unmet medical need.  FDA requested public comment on a proposal that was developed by the President’s Council […]

“Making Cancer Drugs Less Expensive” Linking Clinical Value to Price

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In an opinion piece in the Washington Post, Hagop Kantarjian, Leonard Zwelling, and Tito Fojo offer a perspective on cancer drug prices as well as advice on how to reduce prices. In his book “Justum Pretium,” Aristotle discusses the relationship between price and worth, a topic continued 16 centuries later by Albert the Great and […]

Cancer Leadership Council Submits Comments on the Proposed Rule on Medicaid Cost-Sharing and Other Issues

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NCCS joined colleagues in the cancer advocacy community in submitting comments regarding proposed standards for the expanded Medicaid program that was established by the Affordable Care Act.  The rules that have been proposed by the Centers for Medicare & Medicaid Services would grant a state great flexibility in the design of its Medicaid program, if […]

NCCS Resources Included in eHealth Initiative’s Health IT Cancer Resource Guide

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The National Coalition for Cancer Survivorship is pleased to announce that the eHealth Initiative has included three of NCCS’s patient resources in the recently launched Health IT Cancer Resource Guide. The eHealth Initiative is a non-profit organization whose mission is to drive improvement in the quality, safety, and efficiency of healthcare through information and technology. The national organization […]

NIH study finds increases in risk of certain leukemias related to treatment

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On February 14, 2013, the National Cancer Institute (NCI) announced research that found that adults treated with chemotherapy for non-Hodgkin’s lymphoma and other forms of cancer have an increased risk of acute myeloid leukemia (AML).  The study, completed by researchers at  NCI and colleagues, describes a pattern of risk for those treated with chemotherapy for […]

Do Oncologists Lie to Their Patients About Their Prognoses?

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In a blog in Forbes, Peter Ubel asks, “Do Oncologists Lie to Their Patients About Their Prognoses?” Ubel shares a case study in which an oncologist gave a patient a false and overly optimistic estimate of his chance for remission. He says of the doctor’s action, “The oncologist’s behavior that day, the sudden switch from […]

JAMA Study on End-of-Life Care Shows Increase in Hospice Use and Aggressive Care

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A study published today in the Journal of the American Medical Association examined changes in end-of-life care for Medicare beneficiaries from 2000 to 2009. The study authors reported an increase in the use of hospice care, particularly for cancer patients, but also an increase in ICU usage, health care transitions in the last 90 days […]

States Need “Navigators” for Insurance Exchanges — Difficult Task Ahead

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The Washington Post reports on the daunting task of enrolling 30 million Americans through the health insurance exchanges that will be in place in 2014.  During the enrollment period from October 1, 2013, through March 2014, states will have to enroll thousands of people each day.  States are hiring navigators and assisters to help with […]

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