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NCCS is now Cancer Nation. Find out more about our next chapter.    Join Us

Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3

September 7, 2023/in Cancer Nation News, Cancer Nation Webinars Access to Care, Health Equity, Quality Cancer Care Cancer Nation News

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.

NCCS worked with Edge Research in 2023 to conduct our fifth nationwide survey of cancer survivors. The 2023 survey explores the cancer survivor journey to understand better how we can support our mission to advocate for quality cancer care for all. New this year, we surveyed more than 500 caregivers to understand their perspectives.

Hear the results of the 2023 survey during a virtual briefing on October 3 at 1:00 PM ET.

We will share how caregivers align with and differ from patients regarding decision-making and satisfaction with cancer care. Additionally, our 2023 survey included new questions about survivor and caregiver employment challenges after a cancer diagnosis.

NCCS CEO Shelley Fuld Nasso and Edge Research Principal Pam Loeb will present the survey findings.

This past event registration is now closed. Watch the briefing and read the survey report here.


About the Speakers

Shelley Fuld NassoShelley Fuld Nasso, MPP

As Chief Executive Officer, Shelley Fuld Nasso leads the public policy activities of NCCS at a time of rapid and fundamental health care system change. Shelley joined NCCS in December 2012 and was named CEO in October 2013.

Prior to joining NCCS, Shelley served in leadership roles at Susan G. Komen, where she leveraged Komen’s grassroots network in Washington, D.C., and in state capitals. There she built relationships with policymakers and partner organizations and led a team of staff and volunteer leaders to influence state budgets and legislation. Under her leadership, Komen successfully secured $80 million in state funding for cancer screening and treatment for uninsured and under-insured women. She and her team also expanded the Komen grassroots advocacy program from a pilot of seven affiliates to more than 100 affiliates across the country engaged in federal and state advocacy efforts. Shelley has also served as Director of Community Philanthropy at The Dallas Foundation and held management positions at communications and technology enterprises. She is a graduate of Rice University and holds a Master of Public Policy from the Harvard Kennedy School.

Shelley’s commitment to the work of NCCS is strongly tied to the experiences in the cancer care system of her dear friend, Dr. Brent Whitworth, a beloved physician who was diagnosed with stage IV cancer days before his 42nd birthday and who passed away 19 months later. Through Brent’s experiences, Shelley witnessed the strengths and flaws of the cancer care system and embraces the notion that policy change can make cancer care better for patients and caregivers.

Shelley and her husband Michael live in Maryland and are the parents of three young boys.

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Pam LoebPam Loeb

Pam provides trusted counsel and custom marketing research for clients big and small. As a Principal at Edge, she works regularly with marquee brands to design studies and provide insights that drive their business – K¹² Inc., Kaiser Permanente, National 4-H Council, Cystic Fibrosis Foundation, U.S. Travel Association, the USO, and The Washington Post, to name a few. Pam also manages the firm’s Education and Health & Wellness practices.

While Pam enjoys working with corporations on their branding, messaging, advertising, and new product development, she is also passionate about helping non-profits with their unique challenges, including donor development and retention, public education, and advocacy. Over the last 20 years, she has managed hundreds of studies for NGOs and professional associations to improve their communications and public awareness efforts. Pam has co-authored and presented several public sector-wide studies examining the attitudes, values, and behaviors of charitable donors, which have been featured in The Wall Street Journal and USA Today.
Prior to joining Edge, Pam was Vice President and Executive Director of The Mellman Group where she provided senior analysis and managed the firm’s business operations. Pam’s clients included major non-profit organizations, government agencies, political candidates, and corporations, including United Airlines, the U.S. Department of State, Independent Sector, and World Wildlife Fund. Pam began her market research career at Greenberg-Lake: The Analysis Group, which provided research and strategy to political candidates and non-profit organizations.

Pam and her family live in Baltimore, Maryland, where she is involved in a variety of civic organizations, including Any Given Child (a joint venture between the Baltimore City Public Schools and the Kennedy Center), Enoch Pratt Free Library, and Friends School of Baltimore, where she serves on the Board of Trustees.

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Tags: cancer care, Cancer Survivorship, caregivers, survey
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute