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If you already know of Amy Berman, have heard her story, or have been fortunate enough to have spent time with her, you will read more about what words like “patient centered” and “choosing wisely” look like when carried out to treat metastatic cancer. And you will also be exposed to issues that deal with the concept […]
NCCS joined colleagues in the Cancer Leadership Council in commending the work of the Senate Finance Committee on the SGR Repeal and Medicare Provider Payment Modernization Act of 2014. The legislation offers a responsible process for moving the Medicare program away from a system that emphasizes volume of services to one that focuses on quality […]
Susan Gubar’s voice as a woman living with ovarian cancer (The New York Times Well Blog, March 20, 2014) clearly describes the dilemma of how to manage some of the most distressing features facing people who want to participate in a cancer clinical trial—namely access to these trials and the matters associated with payment for the patient […]
In a recent article posted online via CURE Magazine, Shelley Fuld Nasso describes experiences that underscore the need for improved communication between patients and providers, as well as the evidence-base that informs NCCS’ push for cancer care planning. The Institute of Medicine recently proposed a framework for quality cancer care that centers on engaged patients […]
A summary and overview of the recent “Putting the Cancer Patient First” meeting was posted via Oncology Times online. The meeting was co-hosted by NCCS and the American Enterprise Institute (AEI) on February 28, 2014 and convened leaders in health care policy to discuss issues that impact cancer patients and survivors. Read the summary >> The full meeting can also be […]
NCCS joined the Alliance for Childhood Cancer in submitting comments to the Food and Drug Administration (FDA) following the January 2014 public workshop on complex issues in developing drug and biological products for rare diseases. The Alliance encouraged the FDA to consider the issues specific to pediatric cancers that may be different from other rare […]
NCCS joined with 20 patient advocacy groups and professional societies to urge the Centers for Medicare and Medicaid Services (CMS) to correct a long-standing inequity in Medicare coverage by requiring Medicare Advantage plans to provide coverage for clinical trials. Currently, individuals with Medicare Advantage plans must revert to standard fee-for-service Medicare if they wish to […]
NCCS joined its colleagues in the Cancer Leadership Council in urging the Centers for Medicare & Medicaid Services (CMS) to reconsider the new policy on classes of clinical concern that has been proposed for Medicare Part D beginning in contract year 2015. CMS has proposed removing three classes of drugs from “protected classes” status. In […]
In recent months, there has been significant discussion among cancer patients, their physicians and other health care providers, and cancer organizations about the adequacy of the provider networks in their insurance plans. Cancer patients want assurances that they will receive quality care and can seek second opinions from those with expertise in their particular cancer. […]
This week the National Coalition for Cancer Survivorship (NCCS) joined colleagues in the Cancer Leadership Council (CLC)–a coalition that represents cancer patients, health care professionals, and researchers–in submitting comments on several standards for certification of qualified health plans as outlined in the 2015 Letter to Issuers in the Federally-facilitated Marketplace. The letter commends several recent […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute