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The National Coalition for Cancer Survivorship (NCCS) submitted comments to the House Energy and Commerce Committee on its 21st Century Cures legislative initiative. In our comments, we urged that the 21st Century Cures effort reflect a goal of ensuring delivery of appropriate treatment to each patient, based on a shared decision-making process. To achieve the […]
“The good physician treats the disease; the great physician treats the patient who has the disease.” -William Osler Since the creation of the National Cancer Act in 1971, the medical establishment—and indeed our entire society—has taken up the powerful metaphor of a “war on cancer” as the approach to attacking and overcoming this dreaded disease. This […]
Every so often I see a patient who views cancer as a constant threat to be handled — it becomes so significant that it is as if she can never let her guard down. I always worry about this, partly because that singular focus on fighting cancer can sometimes detract one from other aspects of […]
This guest post is part of the 2015 Cancer Policy Matters “The Imperatives for Quality Cancer Care: 20 Years Later” blog series. Although noted in the literature as early as the 1970’s, serving as the foundation for the 1982 establishment of The Wellness Community (now The Cancer Support Community) and certainly referenced in the 1995 NCCS […]
NCCS submitted comments to the Food and Drug Administration (FDA) on the Draft Guidance: Framework for Regulatory Oversight of Laboratory Developed Tests (LDTs). We support the FDA’s efforts to develop a strong regulatory framework for LDTs and commend the agency for the open and transparent process it has pursued in developing the framework and receiving […]
In “The Punishing Cost of Cancer Care,” Dr. Mikkael Sekeres describes the difficult conversations he has with patients regarding the cost of cancer treatments and how reviewing the economic risks of treatment is now a standard part of his informed consent process. In the vignette he provides, one patient considers whether the cost of treatment outweighs the potential […]
Two stories in last week’s New York Times illustrate the complexities of the changing healthcare marketplace. They both describe discrete issues that beleaguer and hinder the transparency and shared decision-making that we at the National Coalition for Cancer Survivorship (NCCS) call for when patients need to make an informed decision about their care. We comment […]
Guest post by Peter Bach, MD, MAPP, Director of Memorial Sloan Kettering’s Center for Health Policy and Outcomes. Every November is lung cancer awareness month, but this November is on track to being a pretty special one. Lung cancer physicians and public health professionals breathed a collective sigh of relief when Medicare gave a […]
In “Seeing the ‘Invisible Patient,’”Jane Gross addresses the burden of caregiving and how often caregivers’ health, both physical and mental, is overlooked. Ms. Gross refers to an article published in the Journal of the American Medical Association (JAMA) that provides recommendations for lessening the burden and provides a list of questions that doctors and other health […]
Recently, the American Society of Clinical Oncology (ASCO) released an updated cancer survivorship care planning (SCP) template—news that was captured by several medical online news outlets including Healio, Medscape, and Cancer.net. Survivorship care planning is a process of cancer care delivery that NCCS has advocated for over the last 20 years. In follow-up to a […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute