Our mission is to advocate for quality cancer care for all people touched by cancer, but what exactly is “quality cancer care,” and why is it essential for patients and the health care system? The National Academy of Medicine (formerly Institute of Medicine) and others have worked to define quality cancer care. NCCS has represented patient perspectives in these efforts and played a leadership role in building the evidence base for quality cancer care.
NCCS believes that cancer patients should have access to:
Care that adheres to evidence-based guidelines;
Comprehensive cancer care that assures treatment of the symptoms and side effects of cancer and cancer treatment;
Coordinated care with strong communication among all providers and the patient;
A written care plan detailing all elements of cancer care;
Care in a clinical trial, if it represents a potential treatment option;
Shared decision-making, including honest discussion about prognosis, the intent of therapy and the patient’s values and preferences regarding care;
Support for psychosocial needs;
Palliative care throughout the course of treatment, from diagnosis through end of life;
End-of-life care, including but not limited to hospice care;
Post-treatment survivorship care, including a survivorship care plan with a treatment summary and personalized recommendations for monitoring and follow-up care; and
Robust health information systems that support and improve all other aspects of quality cancer care.
Ensuring quality cancer care is complex, and there are many areas for improvement and policy action. An important gap is in treatment decision-making and coordination of the multiple facets of cancer care. To address this gap, NCCS advocates to ensure that every cancer patient has access to cancer care planning and coordination. These services provide cancer patients information to make informed decisions about treatments, encourage collaboration among the multi-disciplinary cancer care providers, and facilitate transitions from active treatment to survivorship.
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png250250actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-22 16:58:172020-09-18 14:00:20Health Care Roundup: Insights on Telehealth, Decline in Medical Visits, Standards of Care, and More
https://canceradvocacy.org/wp-content/uploads/2019/01/Elevating-Survivorship-Logo-web-FB-TW.png6001200actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-22 14:41:212020-07-28 05:43:112020 NCCS Elevate Ambassadors Selected to Improve Survivorship Care in Local Communities
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https://canceradvocacy.org/wp-content/uploads/2020/05/ASTRO-COVID-19-Webinar-ad.jpg6001200actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-11 11:51:012020-07-28 05:45:00Radiation Oncology Care During COVID-19: How Are Cancer Patients Getting Life-Saving Radiation Treatment?
Fourth Relief Package Passed – It’s hard enough to keep up with the day of the week, much less which relief package Congress is currently considering. We’re here to help make sense of what’s happening on Capitol Hill during these unpredictable times. Last week, Congress approved a fourth package totaling $480 billion to help small businesses and hospitals and expand testing for the coronavirus. Early this week, a study that compared cancer and non-cancer patients [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png250250actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-01 17:25:432020-07-06 10:20:36Health Care Roundup: Cancer Care on the Front Lines of COVID-19; Study: Cancer Patients at Higher COVID-19 Risk; COVID-19 Cancer Disparities; More
NCCS has been working diligently to bring you the most up-to-date and critical information for cancer survivors regarding the COVID-19 pandemic. Last week, we hosted a webinar with one of the nation’s leading oncology experts, Dr. Otis Brawley. In this webinar, he outlined how this public health crisis is impacting cancer patients and survivors and what they can do to stay safe. "This is a really difficult time. My recommendation to anyone who has cancer [...]
NCCS hosted a conversation this week about managing anxiety, stress, and grief with psychologist Dr. Imani Price and a panel of cancer survivors and advocates. Dr. Price shared tips on how to cope with stress during this unique time and included strategies such as connecting with friends and family virtually, taking time to get outside each day, getting sufficient sleep, and eating well. Randall Broad, Erin Cummings, Loretta Herring, and Sharon Rivera-Sanchez, all cancer survivors [...]
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Last week, NCCS hosted a conversation with cancer control expert and epidemiologist Otis Brawley, MD. NCCS CEO Shelley Fuld Nasso moderated the discussion. “We knew exactly who we wanted to be our first guest speaker in this series. Dr. Otis Brawley is a Bloomberg Distinguished Professor at Johns Hopkins University, an oncologist and an epidemiologist. [...]
https://canceradvocacy.org/wp-content/uploads/2020/04/Brawley-webinar-COVID-19-blog-img2.jpg6001200actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-04-15 12:33:072020-07-06 10:20:36COVID-19 and Cancer: A Conversation with Cancer Control Expert Otis Brawley, MD
The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
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NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.
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