Access to quality, affordable cancer care is essential for anyone with a cancer diagnosis. Access includes adequate health insurance that covers needed treatments without leaving people with cancer to suffer “financial toxicity.” People with cancer also need the ability to participate in a clinical trial, if it represents a potential treatment option.
Prior to the Affordable Care Act (ACA), cancer survivors were at the mercy of the health care system, often forced to pay exorbitant premiums or simply denied coverage altogether. Today, America’s 17 million cancer survivors benefit from the ACA’s patient protections that provide them with quality, affordable, and accessible health care coverage. Through the ACA, cancer patients and survivors can now purchase insurance through Healthcare.gov and state insurance exchanges. The ACA has afforded protections related to out-of-pocket expenses, lifetime caps, and pre-existing conditions.
NCCS believes in the following principles for access to care:
Individuals with pre-existing conditions must not be denied coverage or charged higher premiums.
Plans must cover all essential health care needs.
Adequate financial assistance must be provided to ensure people with low and moderate incomes can purchase health insurance.
Insurers must not discriminate against older Americans, who are disproportionately impacted by cancer, or women.
Cost-sharing protections must be maintained, including caps on out-of-pocket costs and the elimination of annual and lifetime maximum benefits.
States should take advantage of the ACA’s Medicaid expansion, which provides coverage to low income individuals living with cancer.
People with pre-existing conditions must not be segregated into high-risk pools, which are expensive and burdensome and do not meet the needs of cancer patients.
Cancer patients must have access to comprehensive and well-coordinated cancer care, including clinical trials.
“For a cancer survivor, dealing with the collateral damage of cancer treatment and the continued surveillance for recurrence or secondary cancers, going without insurance is simply not an option. I am very worried that the proposed replacement for the ACA will harm cancer survivors, particularly people with low incomes and people over the age of 50. We simply can’t go back to the days before the ACA when cancer survivors could be denied coverage, and we must ensure people have access to quality, affordable health insurance.”
Michael Kappel, NCCS board member and 13-year colon cancer survivor
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png250250actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-22 16:58:172020-09-18 14:00:20Health Care Roundup: Insights on Telehealth, Decline in Medical Visits, Standards of Care, and More
https://canceradvocacy.org/wp-content/uploads/2019/01/Elevating-Survivorship-Logo-web-FB-TW.png6001200actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-22 14:41:212020-07-28 05:43:112020 NCCS Elevate Ambassadors Selected to Improve Survivorship Care in Local Communities
https://canceradvocacy.org/wp-content/uploads/2018/07/NCCS-News-Cancer-Policy-Matters.jpg6001200actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-22 09:18:162020-07-28 05:44:02NCCS Project Aims to Gain Cancer Survivors’ Insights on Telehealth
https://canceradvocacy.org/wp-content/uploads/2020/05/ASTRO-COVID-19-Webinar-ad.jpg6001200actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-11 11:51:012020-07-28 05:45:00Radiation Oncology Care During COVID-19: How Are Cancer Patients Getting Life-Saving Radiation Treatment?
Fourth Relief Package Passed – It’s hard enough to keep up with the day of the week, much less which relief package Congress is currently considering. We’re here to help make sense of what’s happening on Capitol Hill during these unpredictable times. Last week, Congress approved a fourth package totaling $480 billion to help small businesses and hospitals and expand testing for the coronavirus. Early this week, a study that compared cancer and non-cancer patients [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png250250actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-05-01 17:25:432020-07-06 10:20:36Health Care Roundup: Cancer Care on the Front Lines of COVID-19; Study: Cancer Patients at Higher COVID-19 Risk; COVID-19 Cancer Disparities; More
NCCS has been working diligently to bring you the most up-to-date and critical information for cancer survivors regarding the COVID-19 pandemic. Last week, we hosted a webinar with one of the nation’s leading oncology experts, Dr. Otis Brawley. In this webinar, he outlined how this public health crisis is impacting cancer patients and survivors and what they can do to stay safe. "This is a really difficult time. My recommendation to anyone who has cancer [...]
NCCS hosted a conversation this week about managing anxiety, stress, and grief with psychologist Dr. Imani Price and a panel of cancer survivors and advocates. Dr. Price shared tips on how to cope with stress during this unique time and included strategies such as connecting with friends and family virtually, taking time to get outside each day, getting sufficient sleep, and eating well. Randall Broad, Erin Cummings, Loretta Herring, and Sharon Rivera-Sanchez, all cancer survivors [...]
https://canceradvocacy.org/wp-content/uploads/2020/04/Managing-Stress-Webinar-feat.jpg6001200actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-04-17 12:39:542020-07-06 10:20:36COVID-19 and Cancer Panel Discussion: Managing Stress, Anxiety, and Grief During Uncertain Times
Last week, NCCS hosted a conversation with cancer control expert and epidemiologist Otis Brawley, MD. NCCS CEO Shelley Fuld Nasso moderated the discussion. “We knew exactly who we wanted to be our first guest speaker in this series. Dr. Otis Brawley is a Bloomberg Distinguished Professor at Johns Hopkins University, an oncologist and an epidemiologist. [...]
https://canceradvocacy.org/wp-content/uploads/2020/04/Brawley-webinar-COVID-19-blog-img2.jpg6001200actualizehttps://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.pngactualize2020-04-15 12:33:072020-07-06 10:20:36COVID-19 and Cancer: A Conversation with Cancer Control Expert Otis Brawley, MD
The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
Share Your Story
NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action