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You are here: Home1 / Policy2 / Access to Care

Access to Care

Access to quality, affordable cancer care is essential for anyone with a cancer diagnosis. Access includes adequate health insurance that covers needed treatments without leaving people with cancer to suffer “financial toxicity.” People with cancer also need the ability to participate in a clinical trial, if it represents a potential treatment option.

Prior to the Affordable Care Act (ACA), cancer survivors were at the mercy of the health care system, often forced to pay exorbitant premiums or simply denied coverage altogether. Today, America’s 18.1 million cancer survivors benefit from the ACA’s patient protections that provide them with quality, affordable, and accessible health care coverage. Through the ACA, cancer patients and survivors can now purchase insurance through Healthcare.gov and state insurance exchanges. The ACA has afforded protections related to out-of-pocket expenses, lifetime caps, and pre-existing conditions.

Cancer Nation believes in the following principles for access to care:

  • Individuals with pre-existing conditions must not be denied coverage or charged higher premiums.
  • Plans must cover all essential health care needs.
  • Adequate financial assistance must be provided to ensure people with low and moderate incomes can purchase health insurance.
  • Insurers must not discriminate against older Americans, who are disproportionately impacted by cancer, or women.
  • Cost-sharing protections must be maintained, including caps on out-of-pocket costs and the elimination of annual and lifetime maximum benefits.
  • States should take advantage of the ACA’s Medicaid expansion, which provides coverage to low income individuals living with cancer.
  • People with pre-existing conditions must not be segregated into high-risk pools, which are expensive and burdensome and do not meet the needs of cancer patients.
  • Cancer patients must have access to comprehensive and well-coordinated cancer care, including clinical trials.

“For a cancer survivor, dealing with the collateral damage of cancer treatment and the continued surveillance for recurrence or secondary cancers, going without insurance is simply not an option. I am very worried that the proposed replacement for the ACA will harm cancer survivors, particularly people with low incomes and people over the age of 50. We simply can’t go back to the days before the ACA when cancer survivors could be denied coverage, and we must ensure people have access to quality, affordable health insurance.”

Michael Kappel, Cancer Nation board member and 13-year colon cancer survivor

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IOM Releases “Partnering with Patients” Meeting Summary

August 15, 2013
The Institute of Medicine released a meeting summary today of a workshop that took place in February, "Partnering with Patients to…
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Incorporating Patient Preferences in Practice Guidelines

JAMA Opinion Piece: The Short and Long Term Implications of Myriad Decision

August 1, 2013
On June 13, 2013, the Supreme Court ruled in Association for Molecular Pathology v. Myriad Genetics that a human gene removed from…
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Jessie Gruman’s New York Times Blog Describes Patient’s Post-Discharge Experience

August 1, 2013
Jessie Gruman offers her fellow cancer survivors and their caregivers specific advice for improving the discussion that occurs between…
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Incorporating Patient Preferences in Practice Guidelines

The Definition of “Cancer”: JAMA Opinion Piece Triggers Medical, Scientific, and Policy Debate

July 31, 2013
With the online publication of an opinion piece in the Journal of the American Medical Association, Drs. Laura J. Esserman, Ian M.…
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NCCS Comments on Quality Measures for PPS-Exempt Cancer Hospitals

July 31, 2013
NCCS filed comments in support of proposed cancer care quality measures that will be utilized to assess the cancer care provided by…
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Washington Post Wonkblog Discusses Myriad and BRCA Tests

July 20, 2013
The United States Supreme Court ruled unanimously on June 13, 2013, that human genes cannot be patented.  In the case of Association…
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Clinical Trials System Evaluation and IOM Workshop Summary

July 20, 2013
In the Sunday, July 14, New York Times, Clifton Leaf offered a critical evaluation of clinical trials.  In letters to the editor published…
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The ACA: Health Affairs Explains Upcoming Implementation and Exchanges

July 19, 2013
October 1, 2013 is rapidly approaching. That’s the beginning of open enrollment for insurance through state exchanges created to…
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0 0 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2013-07-19 10:00:182013-07-19 10:00:18The ACA: Health Affairs Explains Upcoming Implementation and Exchanges
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Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

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Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
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Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute