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NCCS - National Coalition for Cancer Survivorship
  • About
        • About Us

        • NCCS is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how NCCS’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
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        • Make A GiftSupport our mission of quality cancer care for all with a gift to NCCS.
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    • NCCS News
    • Advocate SpotlightEach month, NCCS highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how NCCS and others define quality.
        • Access to CareNCCS believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. NCCS works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessNCCS advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
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        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with NCCS.

        • Join NCCS

        • Cancer Policy and Advocacy Team (CPAT)CPAT is a program for survivors and caregivers to learn about pressing issues that affect quality cancer care, in order to be engaged as advocates in public policy.
        • Elevating SurvivorshipA patient-led initiative — NCCS mentors advocates (Elevate Ambassadors) to fill vital gaps in survivorship care in their community.
        • Survivorship ChampionsAn NCCS program for clinicians and researchers who are interested in improving care for cancer survivors.
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations.
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        • NCCS conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
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        • Resources

        • NCCS provides a wide variety of resources for both patients and caregivers.

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ACA Update Jan 5, 2018 | Where the ACA Stands and What Changes to Health Care Lie Ahead in 2018

January 5, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Pre-Existing Conditions NCCS News

AHCA

Prior to the Affordable Care Act (ACA), cancer survivors were at the mercy of the health care system, often forced to pay exorbitant premiums or simply denied coverage altogether. Today, America’s 16 million cancer survivors benefit from the ACA’s patient protections that are critical to providing them with quality, affordable, and accessible health care coverage. NCCS is actively engaged in advocating to ensure this unprecedented access for cancer patients and providers continues.

Not surprisingly, 2018 has started out with a bang and there are significant health care changes already in the works or coming down the pike. In this week’s Affordable Care Act Update, we lay out these changes and how they impact cancer survivors.

Individual Mandate Repeal

At the end of December, Congress passed the Tax Cuts and Jobs Act, which included the repeal of the individual mandate. The Congressional Budget Office (CBO) estimates that 13 million fewer Americans will have insurance coverage over the next decade with repeal of the mandate. In addition, it was projected that premiums would increase by 10% because the pool of individuals purchasing insurance would be sicker and more expensive to insure. As Politico reports, by eliminating the mandate, which requires those who opt out of coverage to pay a penalty, Republicans have finally notched a significant legislative victory in their years-long crusade against Obamacare. President Donald Trump has said that Congress has “essentially repealed” the 2010 health care law. However, this is not accurate as the core provisions in the ACA remain in place, which include protections against pre-existing conditions, lifetime and annual spending caps, Medicaid expansion, and health insurance tax credits.

With repeal of the individual mandate, health care experts continue to debate the future of the ACA. Some think individual mandate repeal poses a serious challenge to the stability of health insurance markets, and that cost-sharing reduction payments and reinsurance funding are critical to providing relief and stability to the markets. Other experts think that the ACA marketplaces are more stable than previously thought and that the mandate repeal will only have a limited impact. All agree that there are some states where the marketplaces have vulnerabilities, even if overall the marketplaces are strong. We should get a better sense of the impact as insurance companies begin to announce their coverage plans over the next few months.

Threat of ACA Repeal Remains

Almost immediately after passage of the tax bill, reports of health coverage signups through the ACA enrollment period ending December 15, 2017, were released. To date, nearly 9 million Americans enrolled in insurance plans. This total is just slightly lower than the previous year’s enrollment of 9.2 million, despite the fact that this enrollment period was cut in half and millions of dollars in funding were cut for advertising and insurance counselors.

Despite another successful ACA enrollment period, Republican Members of Congress have very different views on what is next for the ACA in 2018. In an interview with NPR soon after the tax bill was passed, Senate Majority Leader Mitch McConnell said that it was time for the Senate to move on from additional efforts to repeal the ACA. On the other hand, Senator Lindsay Graham – the proponent of one of several repeal and replace measures considered by the Senate – challenged Leader McConnell and urged another attempt to repeal ACA.

Association Health Plans

Yesterday, the administration released proposed rules regarding Association Health Plans. The expansion of so-called association health plans is part of a broader effort to encourage the rise of cheaper coverage options that are exempt from certain Obamacare patient protections and benefit rules. However, lax rules could open the door to a new wave of poorly regulated health plans that exclude coverage of key services required by the Affordable Care Act, such as hospitalizations and prescription drugs.

“Any one of those steps in isolation wouldn’t necessarily destabilize the markets, but the combination of all these actions is likely to make insurers very nervous,” said Larry Levitt, senior vice president for health reform at the Kaiser Family Foundation. “The ultimate risk is that more insurers decide that the market is too risky and they exit, leaving counties with no options at all.”

AHPs pose a very serious threat to cancer patients and survivors. Because they are not required to cover essential health benefits, they may pull away younger and healthier people, leaving those with pre-existing conditions who need essential health benefit coverage to potentially pay higher costs.

When the time comes, we will be calling on you to be in touch with House and Senate offices to urge action to protect the ACA and oppose any that does not include consumer and patient protections.


Related Posts

https://canceradvocacy.org/blog/wcoe-jan-05-2018/

https://canceradvocacy.org/policy-comments/nccs-concerned-impact-tax-bill-cancer-patients/


Tags: aca update, Advocacy, affordable care act, pre-existing conditions
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Link to: Cancer Policy and Advocacy Team (CPAT)

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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  • About
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute