National Coalition for Cancer Survivorship - State of Survivorship Survey
National Coalition for Cancer Survivorship - State of Survivorship Survey

The State of Cancer Survivorship

The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all. In 2024, we fielded our sixth annual survey.

Hear the 2024 Survivorship Survey Results!

Screenshot of State of Survivorship Survey 2024 Web Briefing

In our 2024 State of Survivorship Survey results briefing, NCCS CEO Shelley Fuld Nasso and Edge Research Principal Pam Loeb highlight both the alignment and differences between caregivers and patients in their decision-making and satisfaction with cancer care. Our 2024 survey also introduced new questions, exploring reasons for participating — or choosing not to participate — in clinical trials, seeking second opinions, and experiences with survivorship care plans, among other topics.

Watch the briefing and find the 2024 Survey summary and materials here.

Survey Reports

2024

thumbnail of 2024 State of Survivorship Executive Summary
Our 2024 survey contained new questions exploring clinical trial participation, seeking second opinions, and experiences with survivorship care plans, among other topics.

2023

Thumbnail of State of Survivorship Survey: 2023 Report Cover by NCCS
The 2023 Survey explored the caregiver experience for the first time. It also features new data on integrative oncology, and the effect of cancer treatment on employment.

2022

The 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.

2021

2021 Survivorship Survey report thumbnail
The 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.

2020

2020 Survivorship Survey Report cover
In the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.

2019

In our initial survey, we found that financial impacts of treatment topped patient’s list of concerns. We also explored side effects of treatment and gaps in survivorship care.

Data Requests

The National Coalition for Cancer Survivorship (NCCS) accepts requests from researchers and advocacy organizations wanting to use the State of Survivorship data set to support their research and practice for the purpose of improving quality of care for those touched by cancer.

Submit a Request »

2024 Program Supporters

Image of Survivorship Survey 2024 Sponsor logos - Presenting Sponsor: Pfizer - Advocacy Partner: Stupid Cancer - Sponsors: Genmab | The Anna Fuller Foundation, Bristol Myers Squibb, Daiichi Sankyo, Novartis | Eisai, Kite A Gilead Company, PhRMA