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NCCS - National Coalition for Cancer Survivorship
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Posts

Cancer Survivorship: You’re Never Really Done

July 28, 2015/in Cancer News, Cancer Policy Blog Care Planning, Quality Cancer Care, Survivorship Care NCCS News /by actualize

When the Imperatives of Quality Cancer Care were written by NCCS 20 years ago, one principle of quality care stated that, “Long-term survivors should have access to specialized follow-up clinics that focus on health promotion, disease prevention, rehabilitation, and identification of physiologic and psychological problems. Communication with the primary care physician must be maintained.” It […]

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Reflections on Cancer Survivors Day: Managing Survivorship for a Lifetime

June 7, 2015/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Clinical Guidelines, Quality Cancer Care, Survivorship Care NCCS News /by actualize

On Sunday, June 7th, we are reminded by cancer centers to celebrate National Cancer Survivors Day®.  Today, there are a sea of colors for different cancer ribbons and wristbands, e.g., the ubiquitous pink for breast cancer, amber for bladder cancer, grey for brain cancer, yellow for all cancers, and so on.  But many of us […]

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https://canceradvocacy.org/wp-content/uploads/2014/06/FacebookProfile3.png 280 280 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-06-07 14:06:042020-11-05 08:20:53Reflections on Cancer Survivors Day: Managing Survivorship for a Lifetime

Honoring Phyllis Torda, a Fierce Advocate for Patient-Centered Health Care

February 26, 2015/in Cancer News NCCS News /by actualize

The National Coalition for Cancer Survivorship (NCCS), notes with sadness the passing of Phyllis Torda, a fierce advocate for patient-centered health care for more than 25 years. We at NCCS first came to know Phyllis when she was with Families USA as their Director of their Health and Social policies. Subsequently, we were very fortunate […]

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https://canceradvocacy.org/wp-content/uploads/2015/02/Phyllis-Websquare.jpg 321 699 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-02-26 10:22:572015-02-26 10:22:57Honoring Phyllis Torda, a Fierce Advocate for Patient-Centered Health Care

The Impetus for Creating the “Imperatives for Quality Cancer Care”

January 28, 2015/in Cancer News, Cancer Policy Blog Care Coordination, Quality Cancer Care NCCS News /by actualize

The impetus for creating an issue paper entitled “Imperatives for Quality Cancer Care” (Imperatives) came from a desire for the National Coalition for Cancer Survivorship (NCCS) to have a snapshot of the state of both the art and science of quality cancer care for people diagnosed with cancer across three domains—psychosocial impacts of the diagnosis; physiological […]

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https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-01-28 12:52:452015-01-28 12:52:45The Impetus for Creating the “Imperatives for Quality Cancer Care”

NCCS Responds to Two Recent Articles Covering the Complexities of Transparency and Shared Decision-Making Issues

November 28, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Clinical Guidelines, Payment Reform, Quality Cancer Care, Survivorship Care NCCS News /by actualize

Two stories in last week’s New York Times illustrate the complexities of the changing healthcare marketplace.  They both describe discrete issues that beleaguer and hinder the transparency and shared decision-making that we at the National Coalition for Cancer Survivorship (NCCS) call for when patients need to make an informed decision about their care.  We comment […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-11-28 13:45:432021-11-02 07:58:00NCCS Responds to Two Recent Articles Covering the Complexities of Transparency and Shared Decision-Making Issues

NCCS Senior Health Policy Advisor Ellen Stovall Responds to Susan Gubar’s “The Cost of Trials”

March 24, 2014/in Cancer News, Cancer Policy Blog Access to Care, Clinical Trials, Health Equity NCCS News /by actualize

Susan Gubar’s voice as a woman living with ovarian cancer (The New York Times Well Blog, March 20, 2014) clearly describes the dilemma of how to manage some of the most distressing features facing people who want to participate in a cancer clinical trial—namely access to these trials and the matters associated with payment for the patient […]

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https://canceradvocacy.org/wp-content/uploads/The-Cost-of-Trials.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-03-24 12:08:442020-11-30 12:21:23NCCS Senior Health Policy Advisor Ellen Stovall Responds to Susan Gubar’s “The Cost of Trials”

NCCS Senior Policy Advisor Responds to Opinionator “A Plan to Fix Cancer Care”

April 1, 2013/in Cancer News Care Planning, Payment Reform, Quality Cancer Care NCCS News /by actualize

NCCS Senior Policy Advisor Ellen Stovall’s advice for immediate reform of cancer care was published in a letter to the editor of the New York Times on April 1, 2013.  Letters from Ms. Stovall and four other writers commented on an opinion piece by Dr. Ezekiel J. Emanuel and others, published in the Times on […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2013-04-01 12:54:022013-04-01 12:54:02NCCS Senior Policy Advisor Responds to Opinionator “A Plan to Fix Cancer Care”

Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute