Survivorship Checklist Detail - NCCS - National Coalition for Cancer Survivorship

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Cancer Survivorship Checklist

What You Need to Know When You Have Finished Treatment

This checklist provides an overview of important information and actions to help you manage your health after you have completed treatment for cancer.

Tom | 45-54 | Finished Treatment | Colorectal Cancer

Care Plan
- Ask for a written treatment summary and care plan for me and my primary care provider. This should include what my treatment was and plans for future tests and visits.
- Discuss with my health care team important topics, including:
  - What recovery from my treatment will be like,
  - Any physical or emotional concerns I still have after treatment ends,
  - Short- and long-term treatment side effects and actions to take when symptoms arise,
  - Screening for recurrence or for new cancers,
  - Diet, exercise, or other health recommendations.
- Review the completed plan with a member of my oncology care team to assure that I understand it.
Communication with My Health Care Team
- Discuss with my health care team who will manage my care after treatment ends — a member of the oncology team, my primary care physician, or both — using the care plan.
- Discuss how my care will be coordinated with my primary care doctor. Ensure my primary care provider understands the required follow-up care specific to my diagnosis and treatment.
- Schedule all necessary appointments and get a copy.
Goals of Healthy Living
- Be physically active and avoid inactivity.
- Eat healthy foods.
- Achieve and maintain a healthy body weight.
- Don’t smoke, chew or sniff tobacco. If I smoke or vape, seek help to quit.
- Practice sun safety daily by using sunscreen and do not use tanning beds.
- Prioritize getting eight hours of sleep.
- See my primary care provider on a regular basis.
Supportive Services
- Discuss and seek a referral for a survivorship clinic to support my recovery after treatment.
- Discuss options for cancer rehabilitation therapy (physical therapy, occupational therapy, and speech therapy) to help prepare for treatment and proactively manage potential side effects.
- Discuss options for integrative oncology (acupuncture, yoga, meditation, oncology massage, and nutrition) to manage my wellness and potential side effects.
- Discuss options for palliative care to support symptom management and maintain quality of life.
Emotional and Mental Health
- Discuss my emotional or psychological concerns (including anxiety, depression, or other worries).
- Prioritize activities that benefit mental health (e.g. therapy, mediations, yoga, or journaling).
- Discuss the fear of recurrence and ways to manage anxiety related to scans and tests.
- Ask for support or counseling for emotional, sexual, or relationship issues.
- Identify support groups or patient advocacy groups where I can get support. Find meaning or make sense of my cancer experience in order to thrive with other cancer survivors.
Work & School Considerations
- DiscussRequest information regarding my rights under the Americans with Disabilities Act (ADA). my emotional or psychological concerns (including anxiety, depression, or other worries).
- Talk to my employer or school to accommodate my care plan
- Discuss whether I am facing any problems at work or school as a result of my treatment.
- Discuss whether I am dealing with any discrimination at my work or school.
Financial Health
- Discuss financial concerns with my care team, especially if financial concerns may make it difficult for me to follow my post-treatment care recommendations.
- Ask for resources for financial support, if needed.
- Discuss any concerns regarding keeping health insurance.
Reference:
National Comprehensive Cancer Network, Inc. (2020). NCCN Guidelines for Patients®: Survivorship Care for Cancer-Related Late and Long-term Effects. Retrieved from https://www.nccn.org/patients/guidelines/content/PDF/survivorship-crl-patient.pdf
National Comprehensive Cancer Network, Inc. (2020). NCCN Guidelines for Patients®: Survivorship Care for Healthy Living. Retrieved from https://www.nccn.org/patients/guidelines/content/PDF/survivorship-hl-patient.pdf

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Acknowledgement

The Survivorship Checklist Website is supported by educational grants from Daiichi Sankyo, Eisai, Janssen Pharmaceuticals, and Pharmacyclics.

GI Cancer Resources

Colorectal Cancer Alliance

Description: Founded in 1999 by a group of 41 survivors, caregivers, and friends, Colorectal Cancer Alliance (CCA) empowers a nation of allies to work with in order to provide genuine support for patients and families, caregivers, and survivors; to raise awareness of preventive measures; and inspire efforts to fund critical research.

Fight Colorectal Cancer

Description: Fight Colorectal Cancer (Fight CRC) is a patient empowerment and advocacy organization, providing balanced and objective information on colon and rectal cancer research, treatment, and policy. They are relentless champions of hope, focused on funding promising, high-impact research endeavors, while equipping advocates to influence legislation and policy for the collective good.

Fight CRC Website »
Fight CRC: Survivorship Care »

GI Cancers Alliance

Description: The GI Cancers Alliance works to raise awareness, provide education and advocate to prevent, treat and cure gastrointestinal cancers through a collaboration between advocacy groups, industry and institutional partners.

GI Cancers Alliance »
GI Cancer Treatment & Survivorship Care Plan Templates »

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Take Action

Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

Learn More and Join »

Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Learn More and Join »

Link to: Survivor Stories

Share Your Story

NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute