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Elleni2025-04-09 13:22:422025-04-10 15:16:53Two Diagnoses, One Mission: Tracy and Tim Steffek on Advocating for SurvivorsAccess to Care
Access to quality, affordable cancer care is essential for anyone with a cancer diagnosis. Access includes adequate health insurance that covers needed treatments without leaving people with cancer to suffer “financial toxicity.” People with cancer also need the ability to participate in a clinical trial, if it represents a potential treatment option.
Prior to the Affordable Care Act (ACA), cancer survivors were at the mercy of the health care system, often forced to pay exorbitant premiums or simply denied coverage altogether. Today, America’s 18.1 million cancer survivors benefit from the ACA’s patient protections that provide them with quality, affordable, and accessible health care coverage. Through the ACA, cancer patients and survivors can now purchase insurance through Healthcare.gov and state insurance exchanges. The ACA has afforded protections related to out-of-pocket expenses, lifetime caps, and pre-existing conditions.
NCCS believes in the following principles for access to care:
- Individuals with pre-existing conditions must not be denied coverage or charged higher premiums.
- Plans must cover all essential health care needs.
- Adequate financial assistance must be provided to ensure people with low and moderate incomes can purchase health insurance.
- Insurers must not discriminate against older Americans, who are disproportionately impacted by cancer, or women.
- Cost-sharing protections must be maintained, including caps on out-of-pocket costs and the elimination of annual and lifetime maximum benefits.
- States should take advantage of the ACA’s Medicaid expansion, which provides coverage to low income individuals living with cancer.
- People with pre-existing conditions must not be segregated into high-risk pools, which are expensive and burdensome and do not meet the needs of cancer patients.
- Cancer patients must have access to comprehensive and well-coordinated cancer care, including clinical trials.
“For a cancer survivor, dealing with the collateral damage of cancer treatment and the continued surveillance for recurrence or secondary cancers, going without insurance is simply not an option. I am very worried that the proposed replacement for the ACA will harm cancer survivors, particularly people with low incomes and people over the age of 50. We simply can’t go back to the days before the ACA when cancer survivors could be denied coverage, and we must ensure people have access to quality, affordable health insurance.”
Michael Kappel, NCCS board member and 13-year colon cancer survivor
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Elleni2025-04-09 13:22:422025-04-10 15:16:53Two Diagnoses, One Mission: Tracy and Tim Steffek on Advocating for Survivors
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Elleni2025-04-08 12:33:482025-04-08 15:54:16NCCS Announces New Elevate Ambassadors Selected to Improve Survivorship In Their Communities
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NCCS Staff2025-04-04 13:54:132025-04-04 13:54:13NCCS to Recognize Susan Leigh, BSN, RN and Desirée Walker with 2025 Ellen L. Stovall Award
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Elleni2025-03-12 11:49:512025-03-12 11:56:49Kirby Lewis – A Relentless Voice for Male Breast Cancer and Survivorship
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Elleni2025-03-12 11:02:192025-04-14 12:20:46NCCS Urges the Supreme Court of the United States to Protect the Rights of Individuals with Medicaid Coverage
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NCCS Staff2025-02-24 15:37:152025-04-14 12:20:33National Patient Organizations United in Opposition to House Budget Resolution that Threatens Medicaid Coverage for Millions
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Elleni2025-02-12 08:56:032025-02-12 09:01:40A Voice for Change: Rebecca Muñoz’s AYA Cancer Journey of Advocacy and Research
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NCCS Staff2025-01-24 11:37:582025-01-24 11:42:34NCCS Joins 28 Organizations Expressing Concern to Humana & CMS Over New Coverage Policy for Non-Small Cell Lung Cancer (NSCLC)
