Ways to Get Involved
Welcome to NCCS’s Advocacy Opportunities page, your go-to resource for staying informed about the latest engagement opportunities in the cancer community. Whether you are a patient, survivor, caregiver, or advocate, there are many ways you can get involved and make a difference.
This page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations. From policy initiatives and surveys to educational webinars, there are opportunities for everyone to get involved.
At NCCS, we are committed to providing resources and support to those who want to make a difference. Whether you are looking to volunteer your time, share your story, or advocate for change, we are here to help.
Browse our list of advocacy opportunities today and find your perfect way to get involved.
Virtual Symposium
Webinars & Community
GRASP Huddles were developed when the demand for more interactions between patients and researchers went beyond the Poster Walkthroughs GRASP offers at cancer conferences.
Huddles are freestanding patient- or researcher-initiated virtual discussions between patient advocates and experts in the field. Because the science does not stop when a conference ends, Huddles occur throughout the year and are unassociated with conferences.
Webinar
Webinar
Research Study
The aim of this study is to examine the feasibility and effects of a 12-week maintenance intervention on physical activity levels six months after completing a community-based exercise oncology program. Research will consist of physical assessments, activity monitoring, questionnaires, exercise and discussion sessions, and an optional focus group.
Three months after the program ends, you will be recontacted to participate in a three-month physical activity maintenance intervention, for a total study participation time of 9-months. There will be a total of four study visits, and they will take place at or near the location of the community-based exercise oncology program that you participate in and/or virtually.
You may be eligible if:
There is no cost to participate and you will be compensated for your time to participate in this study. You will also receive study branded items such as a water bottle and tote bag.
Research Study
The University of Virginia Comprehensive Cancer Center’s Community-Based Health Equity Research Program is testing an innovative program to help rural cancer survivors improve their quality of life by helping them engage in healthful eating and activity habits.
Details: weSurvive is specifically designed for cancer survivors living in rural Appalachia regions or nearby counties. weSurvive was developed due to the disproportionate impact of cancer in rural Appalachia communities, as well as the limited access to evidence-based programs for cancer survivors in the region.
See the study flyer for further details. Scan the QR code or contact Kathleen Porter, PhD via email at kjporter@virginia.edu, or call (434) 235-1112 to learn more and join.
Paid Online Survey/Research
Paid online survey about communication experiences – for US residents only
Staying Connected through Communication Survey
The University of Washington SPEAC Lab is inviting individuals who have had a total laryngectomy to answer survey questions about their communication experiences. Participants are invited to nominate at least one family member, friend, or coworker to also answer survey questions. People with total laryngectomy and their family / friends / coworkers will complete SEPARATE surveys. Your participation will help healthcare providers support people with laryngectomy and the important people in their lives to stay connected through communication. This is an online survey study that will take about 30-45 minutes. We can also mail a paper survey if requested.
Each participant will be mailed a $25 check upon survey completion.
To participate, click here: https://redcap.link/stayingconnected
The person with the laryngectomy needs to start first and then nominate their family member / friend /coworker to participate.
For more information, visit: https://sites.uw.edu/speaclab/
For questions, please contact: speaclab@uw.edu
Research Study
Are you receiving treatment for a blood cancer diagnosis and struggling with poor sleep? You may be eligible to participate in a NIH-funded study for blood cancer patients with poor sleep. Dr. Ruben Mesa and Dr. Jennifer Huberty of Mays Cancer Center at UT Health San Antonio are conducting a 20-week research study that aims to test a digital health wellness intervention among adult blood cancer patients that are currently undergoing treatment.
Participation involves:
• Completing online surveys
• Wearing a sleep device on index finger and tracking nightly sleep
• Providing 3 blood samples at a nearby lab
• Being randomized to use one of two wellness apps
• Using wellness app 10 minutes per day for 8 weeks
They are looking for US based adults with a blood cancer diagnosis to enroll in a 20 week remote study of an app based wellness intervention. Participants can earn up to $100 for completing all study related measures.
Research Study
Baylor University is inviting individuals who are Adolescent and Young Adult (AYA) cancer survivors to participate in a research study about the care they received. This study is specifically for AYA patients who were diagnosed with cancer between the ages of 15 to 39 and are now 18 years of age or older. The questionnaire will take around 10 minutes to complete. Kindly use the provided questionnaire link below:
https://baylor.qualtrics.com/jfe/form/SV_9Hzz3LDmoWL3jGC
For more information, contact rebecca_munoz1@baylor.edu »
Digital Toolkit
The National Cancer Institute’s (NCI) Nation Cancer Plan now has a Digital Toolkit for advocates and advocacy organizations that would like to show support for the National Cancer Plan.
Online Training
Would you like to learn more about American Society of Clinical Oncology (ASCO) cancer survivorship care guidelines? Look no further than the GW Cancer Center’s free, on-line training! It will introduce you to guidelines addressing chemotherapy-induced peripheral neuropathy management, fertility preservation, and osteoporosis management in adult survivors with nonmetastatic disease.
Survey Opportunity
The University of South Carolina invites you to participate in a study to better understand stakeholders knowledge related to cancer related fatigue. This study is for healthcare providers who treat those with cancer or adults with a current or previous diagnosis of cancer. The survey will last approximately 5 minutes. Please use the appropriate survey link provided below:
Healthcare provider:
https://redcap.healthsciencessc.org/surveys/?s=EJ38EWJD3NTNXDL4
Adult with a current or previous cancer diagnosis:
https://redcap.healthsciencessc.org/surveys/?s=3YM7CJTK7PFFE4ET
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute