Advocacy Opportunities
Ways to Get Involved
Welcome to Cancer Nation’s Advocacy Opportunities page, your go-to resource for staying informed about the latest engagement opportunities in the cancer community. Whether you are a patient, survivor, caregiver, or advocate, there are many ways you can get involved and make a difference.
This page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations. From policy initiatives and surveys to educational webinars, there are opportunities for everyone to get involved.
At Cancer Nation, we are committed to providing resources and support to those who want to make a difference. Whether you are looking to volunteer your time, share your story, or advocate for change, we are here to help.
Browse our list of advocacy opportunities today and find your perfect way to get involved.
CANCER NATION EVENTS
Hear the 2025 Survivorship Survey Results!
Hear the results of our 2025 Survivorship Survey. Cancer Nation worked with Edge Research to conduct our seventh annual nationwide survey of cancer survivors, exploring their experiences living with, through, and beyond cancer. Cancer Nation uses this survey to turn lived experience into action by demanding the policies and care survivors need to truly thrive.
New areas we explored in this year’s survey include:
- Management of chronic conditions along with cancer treatment.
- Confidence moving into post-treatment care.
- Deeper dive on Survivorship Care plans.
- Understanding the emotional toll of cancer care on mental health.
- Knowledge of Medicare prescription drug out-of-pocket caps and Medicare Prescription Payment Plan.
- Comfort with the implementation of AI in cancer care.
Cancer Nation CEO Shelley Fuld Nasso and Edge Research Senior Research Analyst Liana Gainsboro present the survey findings in a web briefing.
COMMUNITY OPPORTUNITIES
Rutgers Cancer Institute
Virtual Series
Rutgers Cancer Institute is hosting a free, virtual ECHO series on Screening and Prevention.
The first session will focus on HIV & Cancer and will take place on February 11th from 10:00AM – 11:00 AM EST.
Join us for an informative session exploring the complex relationship between HIV and Cancer. Through our expert led discussion we will explore the ways stigma, history and the underlying factors that intersect to shape patient outcomes. Participants will deepen their understanding of how HIV influences cancer risk.
University of Florida
Research Study
AYA Cancer Patients and Survivors Ages 18 to 29!
We want to learn how AYA cancer patients cope & Adjust throughout their cancer journeys.
Get involved by completing questionnaires and demographic information.
Eligibility Criteria:
- Currently between the ages of 18 to 29
- Diagnosed with cancer between 15 and 29
- On active treatment or within 10 years of being treated
- Able to read and write English
Rare Patient Voice
Research Opportunities
Rare Patient Voice is dedicated to empowering patients and family caregivers by connecting them with paid opportunities to participate in research studies and surveys. These opportunities allow patients to share their experiences and contribute to the development of new medical research and medical products, all while earning compensation for their valuable time.
Hunter College
Research Study
The Psycho-Oncology Lab at Hunter College (CUNY) is seeking research participants for a paid interview study. You will be compensated for participation. To see if you are eligible, complete the online screener.
Leukemia & Lymphoma Society
Survey
Have you received CAR T-cells and wondered about possible effects on your fertility?
Help us gather critical information to determine if CAR T-cells affect fertility.
The survey is conducted by The Leukemia & Lymphoma Society in partnership with Citizen Health, Moffitt Cancer Center, and University of Florida. Survey results will help us understand if CAR T-cells affect fertility and support informed strategies for future patients.
Who can participate?
- Adults over the age of 18
- Received CAR T-cell therapy as a result of a blood cancer diagnosis
Psycho-Oncology Lab
Interview Study
Are you an 18-39 year old cancer survivor?
The Psycho-Oncology Lab at Hunter College (CUNY) is seeking research participants for a paid interview study. Earn $80 for participation. To see if you are eligible, complete the online screener here:
CURE®
Survey
Help Shape the Future of Cancer Education — Share Your Insights
Since 2002, CURE® has provided trusted cancer updates, research, and education. As we continue to evolve, we want to hear directly from you—patients, survivors, and caregivers—about how you prefer to learn and access cancer information.
What challenges do you face when searching for information? What resources do you wish existed? What topics need more attention? Your insights will help uncover gaps in cancer education and identify new ways to make information more accessible, useful, and supportive.
This short survey is your opportunity to share what’s working, what’s missing, and what would make learning about cancer easier for you.
Your voice matters. Help shape the future of cancer education by sharing your perspective today.
University of Minnesota
Research Study
Connecting Patients with Cancer to Social Support Resources
Are you a caregiver for someone with a cancer diagnosis?
Social determinants of health (SDoH) such as housing instability, food insecurity, and financial burden largely shape the health and well-being of individuals. With new advancements in treatment and rising out-of-pocket expenses, individuals facing cancer are especially vulnerable to the adverse effects of SDoH.
Receive $25 for participating.
Interested? Questions? Contact the study team at 612-626-4816 or email connectednest@umn.edu.
UT Health San Antonio
Research Study
“Using Holistic Approaches to Optimize for Latina Cancer Survivors”
UT Health San Antonio is seeking breast cancer survivors to participate in a research study titled, “Using Holistic Approaches to Optimize for Latina Cancer Survivors”. The study includes:
- Individualized Therapeutic Yoga/Mediation
- Nutrition Counseling
- Psychosocial Support
To learn more/register contact:
Sarai Llamas
210-550-3962
Saraellamas.17@gmail.com
or
Dr. Daniel C. Hughes
210-562-6506
hughesdc@uthscsa.edu
Global Survey on Psychosocial Oncology
Survey
Participate in this global survey to better understand the social, emotional, and mental health challenges faced by individuals with cancer and survivors. The goal is to identify barriers and improve the quality and accessibility of essential support services.
ViVE: Center for Virtual Care Value and Equity
Research Study
Are you a breast or prostate cancer survivor in the U.S.?
Join our research study:
Help UNC discover if AI chatbots give quality, accurate healthcare advice to cancer survivors!
SPAACES: Sustaining Physical Activity After Cancer Exercise Sessions
Research Study
Join the SPAACES study to help researchers understand the best way to help maintain a physical activity routine.
The aim of this study is to examine the feasibility and effects of a 12-week maintenance intervention on physical activity levels six months after completing a community-based exercise oncology program. Research will consist of physical assessments, activity monitoring, questionnaires, exercise and discussion sessions, and an optional focus group.
Three months after the program ends, you will be recontacted to participate in a three-month physical activity maintenance intervention, for a total study participation time of 9-months. There will be a total of four study visits, and they will take place at or near the location of the community-based exercise oncology program that you participate in and/or virtually.
You may be eligible if:
- Planning to participate in STAC, BfitBwell, or Fit Cancer programs
- You have been diagnosed with any type of cancer
- You have completed primary cancer treatment within the past 5 years
There is no cost to participate and you will be compensated for your time to participate in this study. You will also receive study branded items such as a water bottle and tote bag.
Staying Connected through Communication Survey
Paid Online Survey/Research
Paid online survey about communication experiences – for US residents only
Staying Connected through Communication Survey
The University of Washington SPEAC Lab is inviting individuals who have had a total laryngectomy to answer survey questions about their communication experiences. Participants are invited to nominate at least one family member, friend, or coworker to also answer survey questions. People with total laryngectomy and their family / friends / coworkers will complete SEPARATE surveys. Your participation will help healthcare providers support people with laryngectomy and the important people in their lives to stay connected through communication. This is an online survey study that will take about 30-45 minutes. We can also mail a paper survey if requested.
Each participant will be mailed a $25 check upon survey completion.
To participate, click here: https://redcap.link/stayingconnected
The person with the laryngectomy needs to start first and then nominate their family member / friend /coworker to participate.
For more information, visit: https://sites.uw.edu/speaclab/
For questions, please contact: speaclab@uw.edu
Poor Sleep During Treatment for Blood Cancer: NIH Study
Research Study
Are you receiving treatment for a blood cancer diagnosis and struggling with poor sleep? You may be eligible to participate in a NIH-funded study for blood cancer patients with poor sleep. Dr. Ruben Mesa and Dr. Jennifer Huberty of Mays Cancer Center at UT Health San Antonio are conducting a 20-week research study that aims to test a digital health wellness intervention among adult blood cancer patients that are currently undergoing treatment.
Participation involves:
• Completing online surveys
• Wearing a sleep device on index finger and tracking nightly sleep
• Providing 3 blood samples at a nearby lab
• Being randomized to use one of two wellness apps
• Using wellness app 10 minutes per day for 8 weeks
They are looking for US based adults with a blood cancer diagnosis to enroll in a 20 week remote study of an app based wellness intervention. Participants can earn up to $100 for completing all study related measures.
National Cancer Plan
Digital Toolkit
The National Cancer Institute’s (NCI) Nation Cancer Plan now has a Digital Toolkit for advocates and advocacy organizations that would like to show support for the National Cancer Plan.
American Society of Clinical Oncology (ASCO)
Online Training
Would you like to learn more about American Society of Clinical Oncology (ASCO) cancer survivorship care guidelines? Look no further than the GW Cancer Center’s free, on-line training! It will introduce you to guidelines addressing chemotherapy-induced peripheral neuropathy management, fertility preservation, and osteoporosis management in adult survivors with nonmetastatic disease.
Survey Opportunity — Providers and Adult Cancer Survivors
Survey Opportunity
The University of South Carolina invites you to participate in a study to better understand stakeholders knowledge related to cancer related fatigue. This study is for healthcare providers who treat those with cancer or adults with a current or previous diagnosis of cancer. The survey will last approximately 5 minutes. Please use the appropriate survey link provided below:
Healthcare provider:
https://redcap.healthsciencessc.org/surveys/?s=EJ38EWJD3NTNXDL4
Adult with a current or previous cancer diagnosis:
https://redcap.healthsciencessc.org/surveys/?s=3YM7CJTK7PFFE4ET
