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NCCS - National Coalition for Cancer Survivorship
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1

Betsy Glosik: A Cancer Survivor’s Journey Towards Integrative Healing and Advocacy

March 8, 2023/in Advocate Spotlight, NCCS News Integrative Oncology, Quality Cancer Care, Quality Measurement, Survivorship Care Advocate Spotlight, NCCS News

For Betsy Glosik, the early 2000s brought one trauma after another. She lost her aunt to melanoma. Then, tragically she lost her 20-yr old daughter to a car accident. In 2003, after years of mentioning her concerns about a mole on her foot to her dermatologist, and repeatedly having her concerns dismissed, Betsy was diagnosed with melanoma…

2

NCCS to Recognize Patricia Ganz, MD and Alicia Staley with 2022 Ellen L. Stovall Award

August 30, 2022/in NCCS News Access to Care, Clinical Guidelines, Clinical Trials, Doctor-Patient Communication, Health Equity, Psychosocial Care, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

NCCS is pleased to announce the 2022 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Patricia A. Ganz, MD, and Alicia Staley. They will be recognized at the 2022 Ellen L. Stovall Award Reception on Wednesday, November 16. NCCS presents the Stovall Award annually to two recipients who have […]

3

NCCS to Recognize Deborah K. Mayer, PhD, RN and Kimberly D. Richardson with 2021 Ellen L. Stovall Award

August 26, 2021/in NCCS News Access to Care, Clinical Trials, Health Equity, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

NCCS is pleased to announce the 2021 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Deborah K. Mayer, PhD, RN, and Kimberly D. Richardson. They will be recognized at the 2021 Ellen L. Stovall Award Reception on Wednesday, November 17. The Stovall Award is given annually to two recipients […]

4

NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients

December 9, 2020/in Cancer News, HHS, NCCS News, Policy Comments Access to Care, Clinical Guidelines, Health Care Coverage, Payment Reform, Quality Cancer Care, Quality Measurement NCCS News, Policy Comments

The National Coalition for Cancer Survivorship (NCCS) recently submitted comments urging the Department of Health and Human Services (HHS) to withdraw a recent proposed rule that would require the review of HHS rules that are more than 10 years old. If implemented, this proposed rule would automatically eliminate regulations that are 10 years old or […]

5

Webinar Video – Redefining Functional Status: A Patient-Led Quality Measurement Effort

February 7, 2020/in Cancer News, Cancer Policy Blog, NCCS News Quality Cancer Care, Quality Measurement NCCS News

“What would health care measurement look like if it reflected what patients and caregivers say matters most to them?” Quality measurement in cancer care is primarily focused on ensuring patients get the right tests and treatments, not whether those treatments help cancer survivors live well during and after cancer. NCCS embarked on an initiative to define quality measures by engaging survivors themselves to identify what’s important to measure. […]

6

Seeing the Bigger Picture of Survival Through Patient Advocacy

November 15, 2017/in Cancer Policy Blog Clinical Guidelines, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

As patient advocates (as in most other things in life), it seems the more we learn, the more see what we don’t know. Whether we’re involved in promoting a patient-centered approach to research, direct care, survivorship, policy change or education, there’s a daily twist and update for us to wrap our brains around. And no matter which arena we find ourselves in, we are always looking for the endpoint: How far have we come in cancer care, and how does […]

7

Dr. Julia Rowland Discusses the Importance of Psychosocial Care: Engagement and Dialogue

November 22, 2015/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Quality Cancer Care, Quality Measurement, Shared Decision-Making NCCS News

This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability(Imperatives). The eleventh principle states that “Psychosocial research is integral to comprehensive cancer care and, as such, psychosocial outcome measures should be included in all future clinical […]

8

NCCS to Join Cancer Twitter Chat on Tuesday, September 29th

September 28, 2015/in Cancer News, Cancer Policy Blog Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

We are pleased to be joining a Cancer Twitter Chat on Tuesday, September 2, 2015 from 2:00 pm to 3:00 pm EDT. The chat will be hosted by the Patient-Centered Outcomes Research Institute (PCORI), an independent nonprofit, nongovernmental organization located in Washington, DC. PCORI was created to help people make better informed healthcare decisions. NCCS […]

9

Video Post: Dr. Claire Snyder Discusses How Patient-Reported Outcomes Can Improve Cancer Care

September 2, 2015/in Cancer News, Cancer Policy Blog Care Planning, Quality Cancer Care, Quality Measurement NCCS News

In March 2015, Dr. Claire Snyder participated in a panel discussion at the Cancer Policy Roundtable hosted by the National Coalition for Cancer Survivorship. The panel featured perspectives on how cancer patients and oncology professionals can work together to improve care planning and patient outcomes. Following the panel, Dr. Snyder sat down with us to […]

10

Guest Post by Dr. Claire Snyder: Driving Quality Cancer Care with Patient-Reported Outcomes

March 24, 2015/in Cancer News, Cancer Policy Blog Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News

Twenty years ago, the National Coalition for Cancer Survivorship’s Imperatives for Quality Cancer Care advocated that “standards of cancer care should be driven by the quality of care.” By giving voice to the patient perspective, patient-reported outcomes (PROs) play a key role in assessing and improving the quality of care and, therefore, in setting these […]

Related News

Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow

May 12, 2023
The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar about survivorship care implementation,…
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https://canceradvocacy.org/wp-content/uploads/Atrium-Health-Wake-Forest-Baptist-update-POST.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-05-12 12:42:192023-05-12 21:48:11Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow

Sandra Finestone, PsyD: Be Bold and Don’t Hesitate – A 30-year Survivor’s Advice on Advocacy

May 8, 2023
Advocate Spotlight: Sandra Finestone, PsyD A cancer diagnosis can be overwhelming and life-changing, but for Sandra Finestone, it…
Read more
https://canceradvocacy.org/wp-content/uploads/Sandra-Finestone-Advocate-Spotlight-Blog-Banner.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-05-08 13:42:472023-05-11 10:49:23Sandra Finestone, PsyD: Be Bold and Don’t Hesitate – A 30-year Survivor’s Advice on Advocacy

Accessing COVID-19 Resources After the Public Health Emergency Ends

May 4, 2023
The COVID-19 public health emergency (PHE), which has been in effect since early 2020, will end on May 11, 2023. The federal government…
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https://canceradvocacy.org/wp-content/uploads/Blog-Webpage-Banner-3.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2023-05-04 17:52:452023-05-04 17:52:45Accessing COVID-19 Resources After the Public Health Emergency Ends

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • State of Survivorship Survey
      • 2022 Survey
      • 2021 Survey
      • 2020 Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Advocate Engagement Opportunities
    • Survivorship Champions
    • Subscribe to NCCS Updates
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State-Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Cancer Rehabilitation
    • Integrative Oncology
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Telehealth
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
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      • Fall 2022 CPR
      • Spring 2022 CPR
      • Fall 2021 CPR
      • Spring 2021 CPR
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    • Cancer Policy and Advocacy Team (CPAT) Virtual Symposium 2022
    • 2022 State of Survivorship Survey Results
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute