The National Coalition for Cancer Survivorship Establishes the Jessie Gruman Patient Engagement Award
For more than twenty years, the National Coalition for Cancer Survivorship (NCCS) had the privilege of adapting our friend and colleague, Jessie Gruman’s important work into the development of the cancer policy work that we engage in. Jessie’s vision of patient engagement was always ahead of its time, and her ...
WCOE: Warlike Metaphors, a Report out of the San Antonio Breast Cancer Symposium, Discussing Costs, and Other News
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. The stories that caught our eye this week included an article that points out the use of warlike metaphors to describe one’s experience of cancer as one that ...
WCOE: Cost of Cancer Care, Adopting a Shorter Course of Treatment for Some Breast Cancer Patients, and Lung Cancer Screening
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. In “The Punishing Cost of Cancer Care,” Dr. Mikkael Sekeres describes the difficult conversations he has with patients regarding the cost of cancer treatments and how reviewing ...
NCCS Offers Policy Comments: Strategies for Increasing Patient Participation in FDA Review Activities
The Food and Drug Administration Safety and Innovation Act (FDASIA) authorized a patient-focused drug development program, and in the years since enactment, the U.S. Food and Drug Administration (FDA) has implemented certain initiatives of the patient-focused program. In recent weeks, FDA has requested feedback regarding patient-focused activities to date and ...
Guest Blog: Fighting Cancer Means Fighting for Cancer Data
The second most common cause of death, cancer touches all of us. According to the Institute of Medicine, the numbers are only projected to increase and care costs are skyrocketing.Yet despite its toll, it’s virtually impossible to answer the question, “Who provides high quality cancer care?” This hinders patients, providers, ...
NCCS Responds to Two Recent Articles Covering the Complexities of Transparency and Shared Decision-Making Issues
Two stories in last week’s New York Times illustrate the complexities of the changing healthcare marketplace. They both describe discrete issues that beleaguer and hinder the transparency and shared decision-making that we at the National Coalition for Cancer Survivorship (NCCS) call for when patients need to make an informed decision ...
Guest Post by Peter Bach: Lung Cancer Awareness Month Brings a Long-Awaited Nod to Lung Cancer Screening
Guest post by Peter Bach, MD, MAPP, Director of Memorial Sloan Kettering’s Center for Health Policy and Outcomes. Every November is lung cancer awareness month, but this November is on track to being a pretty special one. Lung cancer physicians and public health professionals breathed a collective sigh of relief ...
Speaking to the Needs of Patients Living with Advanced Cancers and Honoring Cancer Stories with Cancerversary
Recently, NCCS had the honor of celebrating the work and advocacy of two amazing individuals. Susan Gubar, the author of The New York Times blog “Living with Cancer,” received the Natalie Davis Spingarn Writer’s Award, and Lillie Shockney was awarded the Catherine Logan Award for Service to Survivorship. We encourage ...
WCOE: The Burden of Caregiving, Financial Incentives, Unnecessary Services for Medicare Beneficiaries, and Medicaid Reform
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. In “Seeing the ‘Invisible Patient,’”Jane Gross addresses the burden of caregiving and how often caregivers’ health, both physical and mental, is overlooked. Ms. Gross refers to an ...
NCCS to Honor Two Inspiring Advocates at Focus on the Care Event in Washington, DC
While We Hope for a Cure, We Must Focus on the Care. Please join us on Wednesday, November 19, 2014, as we celebrate recent accomplishments and recognize two remarkable people who have made extraordinary contributions to improving the quality of cancer care and to elevating the conversation about living well with cancer. What: ...
