Exploring Access to Unapproved Therapies
In a series entitled, “When Unapproved Drugs Are the Only Hope,” Meg Tirrell of CNBC takes an in-depth look into the complicated issue of patient access to drugs that have not yet been approved by the FDA, also known as “compassionate use” or expanded access programs (EAPs). She presents the ...
WCOE: Improving Quality for Patients by Delivering and Paying for Care Differently
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. “We need to change the way we pay for cancer care and almost every other type of care in this country.” In two America Tonight segments entitled, ...
WCOE: UnitedHealthcare’s Expanded Participation and Consumer Understanding of Insurance Basics
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. Many new insured individuals under the Affordable Care Act do not understand their plans. In “Biggest Insurer Drops Caution, Embraces Obamacare,” Jay Hancock of Kaiser Health News ...
Mourning the Loss of Patient Advocate Jessie Gruman
We are very sad to hear of the passing of Jessie Gruman, the Founder and CEO of the Center for Advancing Health. Jessie was an inspiring and passionate advocate for patients, and her work has touched many facing the challenges of a chronic illness. We were recently honored to celebrate ...
Reinventing Patient-Centered Cancer Care Brookings Institute “MEDTalk”
On Wednesday, as part of the Merkin Series on Innovation in Care Delivery, the Brookings Institute held an event in their new MEDTalk format titled, Reinventing Patient-Centered Cancer Care. The MEDTalk event follows the popular TED Talk format, and it was designed to feature several short presentations that considered the challenges of delivering oncology care ...
A New Addition to Our Policy Team: Kelsey Nepote’s First Assignment with Alliance for Childhood Cancer Action Days
On Monday of last week it was with great pleasure that I started in my new position at NCCS as Policy and Advocacy Manager. My first assignment was to attend the Alliance for Childhood Cancer Action Days, which NCCS first reported on in June. This two-day event had significant meaning ...
NCCS Responds to 21st Century Cures Initiative Call to Action
The United States House of Representatives' Energy and Commerce Committee released a Call to Action and announced the 21st Century Cures initiative to analyze the discovery, development, and delivery of cures and propose policy solutions. Over the course of the initiative, which officially launched on June 1, 2014, the committee ...
WCOE: Amy Berman’s “Less Is More” Approach and End of Life Care
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. We need compassionate, communicative physicians who can deliver care without feeling like they are abandoning their patients. In the May 22nd Health Affairs online blog, "Living My Life My ...
It Takes a Team – Connecting with Survivors at the Amgen Tour of California
Last week, four members of the NCCS team traveled from our home office outside of DC to join our Breakaway from Cancer partners for eight stages of an outdoor festival at the Amgen Tour of California. Our work with Breakaway from Cancer is an opportunity to get the word out ...
WCOE: Ethics and Discussions about Patient Goals and Preferences, Evidence-Based Medicine
What Caught Our Eye (WCOE) Each week, we take a closer look at the cancer policy articles, studies, and stories that caught our attention. “I must always remind myself that living for the sake of living cannot be the ultimate goal. It has to be informed by quality of life. Only ...
