What Caught Our Eye: ACA Repeal Debate, the FDA’s Oncology Center of Excellence, and The Caregiver Space
What Caught Our Eye (WCOE), Week of January 16, 2017 What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Affordable Care Act Despite recent claims, individual health insurance markets are becoming more stable, not less, according ...
What Caught Our Eye: ACA Repeal Debate, the Trump FDA Transition, and Cancer-Related Fatigue
Today we are re-launching our week-in-review What Caught Our Eye blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Two cancer survivors and friends of NCCS wrote an op-ed in STAT News: “ACA replacement must include affordable insurance for preexisting conditions.” ...
NCCS Statement on Signing Into Law of 21st Century Cures Act
The National Coalition for Cancer Survivorship (NCCS) applauds Congress passing and President Obama signing the 21st Century Cures Act. Cancer survivors and others dealing with serious illness are encouraged to see Congress and the President end 2016 on a positive note by providing a boost in funding for important biomedical ...
Webinar Video: “Cancer Moonshot – Symptom Management and Funding”
This week, NCCS hosted the latest CPAT webinar, Cancer Moonshot: Symptom Management and Funding. The featured presenters were Deborah K. Mayer, PhD, RN, AOCN, FAAN; and MK Holohan, JD. Dr. Mayer is the Director of Cancer Survivorship at the UNC Lineberger Cancer Center and a member of the Cancer Moonshot ...
NCCS Comments on the FDA’s PDUFA Proposed Commitment Letter
NCCS submitted comments to the Food and Drug Administration (FDA) on the letter representing the agreement between FDA and regulated industry on goals for the re-authorization of the Prescription Drug User Fee Act (PDUFA VI). NCCS participated in the PDUFA stakeholder meetings held over the last year, and we support ...
NCCS Joins Letter to Reagan-Udall Foundation Regarding the Expanded Access Navigator Program
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting comments to the Reagan-Udall Foundation regarding the Draft Project Proposal for the Expanded Access Navigator for Individual Patient Access. In our letter, we commend the revisions to guidance documents, FDA educational materials, and the FDA website ...
A Voice for Cancer Survivors in the PDUFA Stakeholder Meetings
In 1992, Congress passed the first Prescription Drug User Fee Act (PDUFA), a law that allows the Food and Drug Administration (FDA) to collect fees from drug companies that apply to the FDA for approval to market their drugs for specific medical conditions, e.g., a chemotherapy drug for ALK-positive lung ...
Celebrating the 2015 NCCS Focus on the Care Honorees in Pictures and Video
Last week we celebrated two individuals how have made cancer care better for survivors and their families—Dr. Richard Pazdur and Ellen Goodman. We were joined by survivors, advocates, researchers, innovators, and friends at our 2015 Focus on the Care reception in Washington, DC on Wednesday, October 21, 2015. In addition ...
NCCS Celebrates “Focus on the Care” Reception in Honor of Dr. Richard Pazdur and Ellen Goodman
Last night survivors, advocates, researchers, innovators, and friends gathered at our 2015 Focus on the Care reception in celebration of two honorees who have used their unique talents to help the millions of people affected by cancer. We are grateful for all who attended to show their support for Dr ...
Revisiting the Fifth Principle of the Imperatives for Quality Cancer Care
This month, as part of the 20 Years Later blog series, we are revisiting the fifth principle of the Imperatives for Quality Cancer Care: Access, Advocacy, and Accountability. This principle states: “People with cancer should be provided a range of benefits by all health care plans that includes primary and ...
