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Tag Archive for: ePatient

Focus on the Care Video: Palliative Care and Living Well with Cancer

June 5, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Palliative Care, Quality Cancer Care NCCS News

Last week we noted two recent articles addressing palliative and end of life care issues, including an article written from the first-hand experience of Amy Berman, who is both a nurse and an individual living with cancer. In Amy Berman’s recent post on the Health Affairs Blog, she describes palliative care as the “best friend of the seriously ill.” […]

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https://canceradvocacy.org/wp-content/uploads/Amy-Berman.jpg 515 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-06-05 13:28:382020-12-01 14:12:26Focus on the Care Video: Palliative Care and Living Well with Cancer

When Talking About the End of Life, Honesty and Words Matter

May 23, 2014/in Cancer News, Cancer Policy Blog Access to Care, Care Coordination, Care Planning, Health Care Coverage, Palliative Care, Quality Cancer Care NCCS News

I attended two different events in Washington, DC this week where the focus was on end-of-life care and the challenges of ensuring that people have quality care and dignity at the end of their life. First was the U.S. Senate Special Committee on Aging roundtable meeting entitled, “Continuing the Conversation: The Role of Health Care Providers […]

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0 0 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-05-23 11:25:092020-10-22 09:55:33When Talking About the End of Life, Honesty and Words Matter

ACOs and Delivering Care for Older Adults: Two Recent Articles That Caught Our Attention

April 21, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Payment Reform, Quality Cancer Care, Survivorship Care NCCS News

“What We Can Learn by Listening to Older Adults” Chris Langston, a program director at the John A. Hartford Foundation, penned a recent Prepared Patient Blog post that resides on the Center for Advancing Health (CFAH) website.  It refers to what many of us have learned from our work in patient advocacy which points to the dilemmas for the […]

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https://canceradvocacy.org/wp-content/uploads/chronic-disease-management.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-04-21 16:13:592021-09-29 05:23:29ACOs and Delivering Care for Older Adults: Two Recent Articles That Caught Our Attention

Amy Berman’s Perspective of Palliative Treatment Highlights Issues in “Triple Aim” Approach to Health Care Delivery

March 28, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Palliative Care, Quality Cancer Care NCCS News

If you already know of Amy Berman, have heard her story, or have been fortunate enough to have spent time with her, you will read more about what words like “patient centered” and “choosing wisely” look like when carried out to treat metastatic cancer.  And you will also be exposed to issues that deal with  the concept […]

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https://canceradvocacy.org/wp-content/uploads/Palliative-Treatment-Highlights-Issues.jpg 545 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-03-28 12:24:592020-11-30 12:17:42Amy Berman’s Perspective of Palliative Treatment Highlights Issues in “Triple Aim” Approach to Health Care Delivery

New York Times Opinion Piece Describes Common Disparities in Communication and Comprehension

February 12, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Quality Cancer Care NCCS News

On February 8, a New York Times opinion piece published online describes a common situation where the disparities in communication and comprehension of clinical information from doctor to patient may have adverse consequences for patients.  The author, Theresa Brown is an an oncology nurse, and she points out that not only can the miscommunication between a health […]

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https://canceradvocacy.org/wp-content/uploads/2013/01/New_York_Times_Thumbnail.jpg 321 600 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-02-12 14:26:062014-02-12 14:26:06New York Times Opinion Piece Describes Common Disparities in Communication and Comprehension

NCCS Responds to Dr. Don Dizon’s “The Awakening of the e-Patient” Commentary

February 6, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Quality Cancer Care NCCS News

In his ASCO Connection commentary, “ The Awakening of the e-Patient: Are We Prepared to Engage?” Dr. Don Dizon confirms from the provider perspective what we at NCCS know to be true: patients want to be engaged in decision-making about their care, especially for a serious diagnosis like cancer. Dr. Dizon writes of the emergence […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-02-06 11:38:072020-10-21 15:10:12NCCS Responds to Dr. Don Dizon’s “The Awakening of the e-Patient” Commentary

New Rule Announced by HHS Secretary Kathleen Sebelius Aims to Empower Patients

February 4, 2014/in Cancer News Care Coordination, Quality Cancer Care NCCS News

The empowered patient is a phrase that is often used to suggest a variety of activities that patients can engage in to allow their sense of access and control in certain situations to emerge.  This sometimes overused phrase seems particularly interesting to people with cancer who often report that waiting for lab results is a […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-02-04 14:27:522014-02-04 14:27:52New Rule Announced by HHS Secretary Kathleen Sebelius Aims to Empower Patients

“We Are Giving Ourselves Cancer” Op Ed: Consequences of Radiation from Medical Imaging

January 31, 2014/in Cancer News Care Coordination, Care Planning, Quality Cancer Care NCCS News

In a January 31st  New York Times  Op Ed,  Drs. Rita Redberg and Rebecca Smith-Bindman of UCSF Medical Center report on how the increased uses of medical technologies for diagnosing, treating, and monitoring diseases like cancer, are contributing to unprecedented exposures to radiation.  The consequences of these exposures is well documented, particularly for people diagnosed […]

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https://canceradvocacy.org/wp-content/uploads/2013/01/New_York_Times_Thumbnail.jpg 321 600 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-01-31 18:10:182014-01-31 18:10:18“We Are Giving Ourselves Cancer” Op Ed: Consequences of Radiation from Medical Imaging

IOM Releases “Partnering with Patients” Meeting Summary

August 15, 2013/in Cancer News Care Coordination, Quality Cancer Care NCCS News

The Institute of Medicine released a meeting summary today of a workshop that took place in February, “Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvements.” A short video capturing the key messages of the workshop, and including the voice of patients, has also been released. In an efficient health care system, […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2013-08-15 13:14:242013-08-15 13:14:24IOM Releases “Partnering with Patients” Meeting Summary

Do Oncologists Lie to Their Patients About Their Prognoses?

February 8, 2013/in Cancer News, Cancer Policy Blog Care Coordination, Quality Cancer Care, Survivorship Care NCCS News

In a blog in Forbes, Peter Ubel asks, “Do Oncologists Lie to Their Patients About Their Prognoses?” Ubel shares a case study in which an oncologist gave a patient a false and overly optimistic estimate of his chance for remission. He says of the doctor’s action, “The oncologist’s behavior that day, the sudden switch from […]

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Latest News

Brett Wilson – Navigating Childhood Cancer and Finding Purpose in Advocacy

September 13, 2023
Advocate Spotlight: Brett Wilson Brett Wilson's cancer experience started when she was just two years old. Her mother was concerned…
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Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3

September 7, 2023
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge…
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https://canceradvocacy.org/wp-content/uploads/Survey-2023-briefing-mc-1200px-2-1.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-09-07 11:00:202023-09-07 11:00:20Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3
We did it! DIEP Flap Codes Saved

CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery

August 22, 2023
Yesterday, the Centers for Medicare and Medicaid Services (CMS) announced that it will retain procedure codes for breast cancer reconstruction,…
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute