• Facebook
  • Twitter
  • Youtube
  • Instagram
  • LinkedIn
  • Rss
  • Store
  • Donate
NCCS - National Coalition for Cancer Survivorship
  • About
    • Our Mission
    • Our History
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State-Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • Ellen L. Stovall Award
      • Nominations
      • Awardees
      • Committees
      • Sponsors
    • Cancer Policy Roundtable (CPR)
      • Spring 2022 CPR
      • Fall 2021 CPR
      • Spring 2021 CPR
      • Fall 2020 CPR
      • Spring 2020 CPR
    • 2021 State of Survivorship Survey Results Briefing
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2021
    • From Shadows to Life: A Biography of the Cancer Survivorship Movement
    • Webinars
  • Contact Us
  • Search
  • Menu Menu
  • 0Shopping Cart

Your generous year-end donation will be matched $1 for $1    DONATE

Posts

Health Care Roundup: Trump Drug Pricing Plan; HHS Cuts ACA Navigator Funding; CAR-T Therapy Coverage Issues; Biosimilar News; and More

July 20, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage NCCS News /by actualize

Comment Period Closed for Trump Drug Pricing Plan — Comments for the Department of Health and Human Services’ (HHS) drug pricing proposal were due this week. The plan, introduced by the Trump administration, outlined proposals seeking to increase competition, reduce out-of-pocket costs and incentivize better negotiations for lower drug prices. NCCS joined with other organizations of the Cancer Leadership Council (CLC) to provide comments […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-07-20 15:43:422018-07-20 15:43:42Health Care Roundup: Trump Drug Pricing Plan; HHS Cuts ACA Navigator Funding; CAR-T Therapy Coverage Issues; Biosimilar News; and More

NCCS Joins Cancer Leadership Council Comment Letter Regarding the Drug Pricing Blueprint “American Patients First”

July 17, 2018/in Cancer News, Cancer Policy Blog, HHS, NCCS News, Policy Comments Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage NCCS News, Policy Comments /by actualize

The National Coalition for Cancer Survivorship (NCCS) joined with other organizations of the Cancer Leadership Council (CLC) to provide comments regarding the Trump administration’s drug pricing blueprint, “American Patients First.” Sent to Department of Health and Human Services Secretary Alex Azar, the letter outlines the groups’ concerns and asks questions of HHS about the plan’s […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/10/NCCS-Policy-Comments-HHS-bldg.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-07-17 12:47:592018-07-17 12:47:59NCCS Joins Cancer Leadership Council Comment Letter Regarding the Drug Pricing Blueprint “American Patients First”

Health Care Roundup: CMS Halts ACA Risk Payments, Slashes Navigator Funding; Long-Term Outcomes for Young Survivors; Drug Pricing; More

July 13, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS News /by actualize

CMS Halts ACA Risk-Adjustment Payments and Cuts Funding for Health Coverage Navigators — This week, the Centers for Medicare and Medicaid Services (CMS) announced two new actions that could harm the Affordable Care Act (ACA) marketplaces and enrollment. Last Saturday, CMS announced that it would halt the risk-adjustment program, including $10 billion in payments due to insurers for costs incurred last year. […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-07-13 16:28:152018-07-13 16:28:15Health Care Roundup: CMS Halts ACA Risk Payments, Slashes Navigator Funding; Long-Term Outcomes for Young Survivors; Drug Pricing; More

Health Care Roundup: DOJ Won’t Defend ACA Provisions in Court, Health Care’s Role in 2018 Midterms, and More

June 8, 2018/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Clinical Trials, Drug Pricing, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS News /by actualize

Administration Action Threatens Coverage for People with Pre-existing Conditions — In a court filing yesterday, the Department of Justice (DOJ) stated that it would not defend key provisions of the Affordable Care Act in a lawsuit brought by Texas and several other states. One provision is the individual mandate, which was repealed in the tax bill passed by Congress and signed into law last December. Also at issue in the case is coverage and […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-06-08 17:36:052018-06-08 17:36:05Health Care Roundup: DOJ Won’t Defend ACA Provisions in Court, Health Care’s Role in 2018 Midterms, and More

Health Care Roundup: Virginia to Expand Medicaid, Colorectal Screening Guidelines, How the ‘Bewildering’ Health Insurance Industry Works, and More

June 1, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Guidelines, Drug Pricing, Health Care Coverage, Quality Cancer Care, Survivorship Care NCCS News /by actualize

Virginia Votes to Expand Medicaid — Both chambers of the Virginia Legislature moved a budget bill Wednesday that would expand Medicaid through the Affordable Care Act (ACA). The bill would make Virginia the 33rd state to expand Medicaid under Obamacare and could lead to as many as 400,000 people being newly covered. “As a doctor, I’m so proud of the significant step we’ve taken together to help Virginians get quality, affordable […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-06-01 16:08:072018-06-01 16:08:07Health Care Roundup: Virginia to Expand Medicaid, Colorectal Screening Guidelines, How the ‘Bewildering’ Health Insurance Industry Works, and More

Health Care Roundup: Drug Pricing Plan, 2019 Premium Increases, Short-Term Plans, Medicare Mulls Covering Gene Therapies, and More

May 18, 2018/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Care Coverage, Health Equity NCCS News /by actualize

Trump Administration Promotes a Drug Pricing Plan – On Friday, May 11, 2018, President Trump announced a drug pricing blueprint to address prescription drug prices. Initial media coverage of the plan suggested that the blueprint failed to honor the President’s campaign commitment to negotiation of drug prices. Overall, the press and policymaker reaction to the plan was muted, with some suggesting that the plan would have limited impact. […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-05-18 13:48:582018-05-18 13:48:58Health Care Roundup: Drug Pricing Plan, 2019 Premium Increases, Short-Term Plans, Medicare Mulls Covering Gene Therapies, and More

WCOE: Health Care Access and Affordability; FDA’s Plans to Better Incorporate Patient Voice in Drug Development; Patient Portal Pitfalls; and More

March 30, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care NCCS News /by actualize

What Caught Our Eye (WCOE) is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. — “Why Some Americans Are Risking It and Skipping Health Insurance” — In tiny Marion, North Carolina, the Buchanans decided that $1,800 a month was too much to pay for health insurance, and are going without it for the first time in their lives. […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-03-30 17:29:362018-03-30 17:29:36WCOE: Health Care Access and Affordability; FDA’s Plans to Better Incorporate Patient Voice in Drug Development; Patient Portal Pitfalls; and More

Patient Assistance Programs: Do They Help or Hurt?

March 26, 2018/in Cancer News, Cancer Policy Blog Access to Care, Drug Pricing, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care NCCS News /by actualize

By Rishi Sachdev and Yousuf Zafar, MD — New cancer drugs have improved prognoses for patients, but that improvement in effectiveness has come at a steep cost. The price tag of new anticancer drugs has been increasing at a significant pace, with the latest—Kymriah by Novartis—priced at $475,000 per treatment. These ever-increasing costs result in higher out-of-pocket costs for patients, which have been shown to worsen outcomes. […]

Read more
https://canceradvocacy.org/wp-content/uploads/Patient-Assistance-Programs.jpg 515 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-03-26 15:12:582020-12-01 10:55:19Patient Assistance Programs: Do They Help or Hurt?

WCOE: No Action on ACA Stabilization Bill; ‘Black Cancer Matters’; Risks of At-Home Genetic Testing; Hospital Payment Reform; and More

March 23, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Disparities in Outcomes, Drug Pricing, Financial Toxicity, Health Equity, Payment Reform, Quality Cancer Care NCCS News /by actualize

What Caught Our Eye (WCOE), is our week-in-review blog series. “Health insurers say the GOP-led Congress’ inaction on ACA stabilization legislation is sure to hurt consumers” Bruce Japsen, Forbes.com — After months of negotiating around an ACA stabilization package that was set to be included in this week’s spending bill, no agreement was made and the stabilization provisions were left out of the spending package all together. […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-03-23 15:52:342018-03-23 15:52:34WCOE: No Action on ACA Stabilization Bill; ‘Black Cancer Matters’; Risks of At-Home Genetic Testing; Hospital Payment Reform; and More

WCOE: HHS Hints at Lax ACA Regulation; Burden of High Drug Costs; FDA’s Gottlieb Blasts ‘Rigged Payment Scheme’; Home BRCA Testing; More

March 9, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Drug Pricing, Financial Toxicity, Health Equity NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. – “Trump Administration Blocks Idaho’s Plan to Circumvent Health Law” –
While rejecting Idaho’s plan in its current form, Ms. Verma encouraged the state to keep trying, and she suggested that, “with certain modifications,” its proposal might be accepted. […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-03-09 17:40:262018-03-09 17:40:26WCOE: HHS Hints at Lax ACA Regulation; Burden of High Drug Costs; FDA’s Gottlieb Blasts ‘Rigged Payment Scheme’; Home BRCA Testing; More
Page 4 of 512345

Latest News

Advocate Spotlight Wenora Johnson

Wenora Johnson: The Art of Caregiving: Connection and Kindness

June 1, 2022
Advocate Spotlight June 2022 - Wenora Johnson “One of the most important lessons…
Read more
https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Wenora-Johnson-wp-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-06-01 13:00:282022-06-01 13:02:13Wenora Johnson: The Art of Caregiving: Connection and Kindness
Beyond the Checkbox: Cancer Survivorship Care Delivery in the Community - Dr. Crystal Labbato

Webinar – Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting

May 20, 2022
Last week, NCCS hosted a conversation with cancer control expert and epidemiologist Otis Brawley, MD. NCCS CEO Shelley Fuld Nasso moderated the discussion. “We knew exactly who we wanted to be our first guest speaker in this series. Dr. Otis Brawley is a Bloomberg Distinguished Professor at Johns Hopkins University, an oncologist and an epidemiologist. [...]
Read more
https://canceradvocacy.org/wp-content/uploads/Beyond-the-Checkbox-Crystal-Labbato.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-05-20 13:39:272022-05-20 13:39:27Webinar – Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting
Michelle Mollica PhD Webinar Survivorship Needs for People with Metastatic and Advanced Cancers

Webinar: Survivorship Needs for People Living with Advanced and Metastatic Cancers

May 6, 2022
Last week, NCCS hosted a conversation with cancer control expert and epidemiologist Otis Brawley, MD. NCCS CEO Shelley Fuld Nasso moderated the discussion. “We knew exactly who we wanted to be our first guest speaker in this series. Dr. Otis Brawley is a Bloomberg Distinguished Professor at Johns Hopkins University, an oncologist and an epidemiologist. [...]
Read more
https://canceradvocacy.org/wp-content/uploads/Webinar-Michelle-Mollica-Metastatic-Survivorship-Needs.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-05-06 11:32:162022-05-06 12:35:15Webinar: Survivorship Needs for People Living with Advanced and Metastatic Cancers

Take Action

Make An Impact

We are relentless in improving the quality of care and life after a cancer diagnosis. Your support makes all the difference right now.

Make a Gift »

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Share Your Story

NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • This field is for validation purposes and should be left unchanged.
  • About
    • Our Mission
    • Our History
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State-Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • Ellen L. Stovall Award
      • Nominations
      • Awardees
      • Committees
      • Sponsors
    • Cancer Policy Roundtable (CPR)
      • Spring 2022 CPR
      • Fall 2021 CPR
      • Spring 2021 CPR
      • Fall 2020 CPR
      • Spring 2020 CPR
    • 2021 State of Survivorship Survey Results Briefing
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2021
    • From Shadows to Life: A Biography of the Cancer Survivorship Movement
    • Webinars
  • Contact Us

National Coalition for Cancer Survivorship
8455 Colesville Road  |  Suite 930  |  Silver Spring, MD 20910
877-NCCS-YES  |  info@canceradvocacy.org
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2021 by the National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.

Scroll to top
Get Updates From NCCS

Be the first to hear about cancer policy and survivorship issues! Subscribe and receive the biweekly NCCS Health Care Roundup, invites to webinars and events, and more.

  • This field is for validation purposes and should be left unchanged.

Connect With Us

Twitter     Facebook     Instagram     LinkedIn     YouTube

Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute