NCCS CEO Shelley Fuld Nasso Discusses Cancer Survivorship Issues On “Great.com Talks With…” Podcast
NCCS CEO Shelley Fuld Nasso recently discussed how we can improve cancer survivors’ lives with Emil Ekvardt, founder of Great.com, on an episode of their "Great.com Talks With..." podcast. Cancer survivors often face long term debilitating effects from cancer treatment such as: fatigue, cognitive issues, depression, and anxiety. Patients need ...
NCCS Advocate Spotlight: Rachel Ferraris
Advocate Spotlight July 2021 | Rachel Ferraris Nearly all cancer survivors can reflect on their cancer journey and recall one specific moment – the low point. To be able to reflect on that moment is, of course, the real gift. It means you are a survivor. Reaching the light of ...
NCCS Elevate Ambassador Kimberly Richardson Drives Award-Winning SASEP Initiative
As lifelong Chicagoan Kimberly Richardson trained for the 2013 Chicago Marathon, the unusual lethargy she felt drove her into her doctor's office. Diagnosed with an ovarian cyst she was scheduled for a routine surgery to remove it. She woke from the surgery to a tap on her shoulder, "Kim, it's ...
Survivorship Champions: A New NCCS Initiative for Clinicians and Researchers
How one survivor’s journey led to her realization of what survivorship care is lacking and the importance of advocating for yourself during survivorship. Note: This post originally appeared in the Spring 2021 issue of HEAL, a survivorship magazine from CURE Today. Shelley Fuld Nasso, MPP By NCCS CEO Shelley Fuld ...
Biden Rescinds Trump Admin Proposal to Limit Medicare Part D Coverage of Drugs in “Six Protected Classes”
This week, the Biden administration rescinded a Trump administration-proposed plan that would have allowed Medicare Part D plans to limit coverage of some drugs in each of the "six protected classes." The Trump policy sought to remove the protected classes and allow coverage of only one drug per class, including ...
NCCS Recommends That States Allocate COVID-19 Vaccines to Cancer Care Providers
The National Coalition for Cancer Survivorship (NCCS) and the Cancer Leadership Council (CLC) sent a letter to the CDC's Advisory Committee on Immunization Practices (ACIP) to recommend actions to accelerate the vaccination of cancer survivors, who are at risk of poor outcomes from COVID-19. Cancer patients have been confronted by ...
NCCS and Other Cancer Groups Urge HHS to Keep Six Protected Classes in Medicare Part D Drug Plans
The National Coalition for Cancer Survivorship (NCCS) joined with the Cancer Leadership Council (CLC) in urging Health and Human Services Secretary-Designate Xavier Becerra to protect Medicare beneficiaries’ access to Part D drugs in six protected classes, which include certain cancer treatments. In January, the Centers for Medicare and Medicaid Services ...
NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care
The National Coalition for Cancer Survivorship (NCCS) joined other member organizations of the Cancer Leadership Council (CLC) in a letter to Centers for Medicare & Medicaid Services (CMS) Administrator Seema Verma, urging “immediate action” by CMS to withdraw an interim final rule that implements a most favored nation (MFN) model ...
NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients
The National Coalition for Cancer Survivorship (NCCS) recently submitted comments urging the Department of Health and Human Services (HHS) to withdraw a recent proposed rule that would require the review of HHS rules that are more than 10 years old. If implemented, this proposed rule would automatically eliminate regulations that ...
NCCS and Cancer Groups Urge National Academy of Medicine to Include Cancer Patients in Phase IB COVID-19 Vaccine Allocation
NCCS joined with a group of patient and provider advocacy groups in a letter to the National Academy of Medicine (NAM) on vaccine allocation. In the letter, the groups articulate the substantial risk that cancer patients face during the pandemic and shared data on the negative outcomes of patients with ...
