Ways to Get Involved
Welcome to NCCS’s Advocacy Opportunities page, your go-to resource for staying informed about the latest engagement opportunities in the cancer community. Whether you are a patient, survivor, caregiver, or advocate, there are many ways you can get involved and make a difference.
This page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations. From policy initiatives and surveys to educational webinars, there are opportunities for everyone to get involved.
At NCCS, we are committed to providing resources and support to those who want to make a difference. Whether you are looking to volunteer your time, share your story, or advocate for change, we are here to help.
Browse our list of advocacy opportunities today and find your perfect way to get involved.
Virtual Webinar
Whole person cancer care involves learning what matters most to patients and engaging them in health and wellness behaviors that influence their wellbeing and longevity as cancer is treated. Such care explicitly addresses mind-body-behavior-social and spiritual aspects of a person’s life. This helps oncology teams manage the fear and confusion that come along with the disease, helps oncology teams find greater joy in their work, and returns healing to medicine.
Join the Healing Works Foundation team for a presentation grounded in insights from two years’ worth of data and providing actions that can be implemented to make integrative practices the norm in cancer treatment and survivorship. We will review results of nationally representative surveys among people with cancer and treating oncologists, looking at their usage of and attitudes toward complementary therapies. Importantly, we will review disconnects among doctors and patients, as well as drivers and barriers to increase adoption among both groups.
Learn more about NCCS’s Survivorship Champions program for clinicians and researchers: https://canceradvocacy.org/champions
Wednesday, May 1, 2024
12:00 PM – 1:00 PM ET
Digital Clinic
The Colorectal Cancer Circle is a safe place to laugh, cry, share, and embrace ourselves and each other.
The theme of the April session is: Practicing Gratitude.
Take a few moments today to reflect on the positive aspects of your life, no matter how small. Whether it’s the warmth of the sun on your face or the kindness of a friend, cultivating gratitude can help shift your focus toward the abundance that surrounds you. By nurturing a grateful mindset, you’ll invite more positivity into your life and enhance your overall well-being.
Virtual Webinar
Sponsored by the Care and Treatment Subcommittee of the NC Advisory Committee on Cancer Coordination and Control and the NC Comprehensive Cancer Control Program.
Seminar Description
We are excited to offer an Educational Seminar Series focused on the Why, Where, What, Who, AND How of Palliative Care. This series is intended to explore why palliative care exists and the need, from diagnosis through survivorship. During these seminars, panelists will share information that will help attendees to learn more about palliative care, hear more about unique examples of palliative care delivery, and share more information on palliative care resources. Learning Outcomes
-Understand the need for palliative care from diagnosis through survivorship.
-Describe ways that you can implement/ improve palliative care in your practice.
-Share unique examples of palliative care delivery.
Target Audience
Individuals, Caregivers, Community Members, Health Care Providers, Clinicians, Students and Faculty
Virtual Webinar
Speakers:
Veena Shankaran, MD, MS
Professor, Clinical Research Division
Co-Director, Hutchinson Institute for Cancer Outcomes Research
Fred Hutchinson Cancer Center
Professor, Medical Oncology
University of Washington School of Medicine
Intended Audience: The intended audience is researchers, advocates, clinicians, and policy makers interested in cancer survivorship.
OCS Events and Webinars Webpage: https://cancercontrol.cancer.gov/ocs/about/events
Virtual Webinar
Join the NCI Office of Cancer Survivorship (OCS) for this OCS Director’s Series webinar on June 18. This event will feature a panel discussion, Survivor Voices: The Vital Role of Survivors in Advancing Cancer Survivorship Research.
Panel:
Phuong Gallagher
RATS Program Manager
Fight Colorectal Cancer
Colin Goodwin, PsyD
Psychosocial Service Coordinator
Oncology Department
Kaiser Permanente San Jose
Ameish Govindarajan, MD
Hospice and Palliative Medicine Fellow
Department of Medicine
Memorial Sloan Kettering Cancer Center
Montessa Lee, MS
Advocate
Lung Cancer Foundation of America
Intended Audience: The intended audience is researchers, advocates, clinicians, and policy makers interested in cancer survivorship.
OCS Events and Webinars Webpage: https://cancercontrol.cancer.gov/ocs/about/events
Paid Online Survey/Research
Paid online survey about communication experiences – for US residents only
Staying Connected through Communication Survey
The University of Washington SPEAC Lab is inviting individuals who have had a total laryngectomy to answer survey questions about their communication experiences. Participants are invited to nominate at least one family member, friend, or coworker to also answer survey questions. People with total laryngectomy and their family / friends / coworkers will complete SEPARATE surveys. Your participation will help healthcare providers support people with laryngectomy and the important people in their lives to stay connected through communication. This is an online survey study that will take about 30-45 minutes. We can also mail a paper survey if requested.
Each participant will be mailed a $25 check upon survey completion.
To participate, click here: https://redcap.link/stayingconnected
The person with the laryngectomy needs to start first and then nominate their family member / friend /coworker to participate.
For more information, visit: https://sites.uw.edu/speaclab/
For questions, please contact: speaclab@uw.edu
Research Study
Are you receiving treatment for a blood cancer diagnosis and struggling with poor sleep? You may be eligible to participate in a NIH-funded study for blood cancer patients with poor sleep. Dr. Ruben Mesa and Dr. Jennifer Huberty of Mays Cancer Center at UT Health San Antonio are conducting a 20-week research study that aims to test a digital health wellness intervention among adult blood cancer patients that are currently undergoing treatment.
Participation involves:
• Completing online surveys
• Wearing a sleep device on index finger and tracking nightly sleep
• Providing 3 blood samples at a nearby lab
• Being randomized to use one of two wellness apps
• Using wellness app 10 minutes per day for 8 weeks
They are looking for US based adults with a blood cancer diagnosis to enroll in a 20 week remote study of an app based wellness intervention. Participants can earn up to $100 for completing all study related measures.
Research Study
Participants are needed for a UCLA-funded research study to understand cancer survivors’ experiences with Health Insurance. Interested in participating? Scan the QR code in the flyer or email JObidike@mednet.ucla.edu.
Research Study
STEP (Sleep Treatment Education Program) currently has two active insomnia studies.
Learn more about participating in these sleep treatment education programs here »
Research Study
Baylor University is inviting individuals who are Adolescent and Young Adult (AYA) cancer survivors to participate in a research study about the care they received. This study is specifically for AYA patients who were diagnosed with cancer between the ages of 15 to 39 and are now 18 years of age or older. The questionnaire will take around 10 minutes to complete. Kindly use the provided questionnaire link below:
https://baylor.qualtrics.com/jfe/form/SV_9Hzz3LDmoWL3jGC
For more information, contact rebecca_munoz1@baylor.edu »
Digital Toolkit
The National Cancer Institute’s (NCI) Nation Cancer Plan now has a Digital Toolkit for advocates and advocacy organizations that would like to show support for the National Cancer Plan.
Online Training
Would you like to learn more about American Society of Clinical Oncology (ASCO) cancer survivorship care guidelines? Look no further than the GW Cancer Center’s free, on-line training! It will introduce you to guidelines addressing chemotherapy-induced peripheral neuropathy management, fertility preservation, and osteoporosis management in adult survivors with nonmetastatic disease.
Survey Opportunity
The University of South Carolina invites you to participate in a study to better understand stakeholders knowledge related to cancer related fatigue. This study is for healthcare providers who treat those with cancer or adults with a current or previous diagnosis of cancer. The survey will last approximately 5 minutes. Please use the appropriate survey link provided below:
Healthcare provider:
https://redcap.healthsciencessc.org/surveys/?s=EJ38EWJD3NTNXDL4
Adult with a current or previous cancer diagnosis:
https://redcap.healthsciencessc.org/surveys/?s=3YM7CJTK7PFFE4ET
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute